A Message from UMDF on the Passing of Prince Frederik
We at UMDF wish to share our deepest condolences with the family of Prince Frederik, who passed away at age 22 from the mitochondrial disease...
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November 2024 Newsletter: FDA News, Rare Revolution Magazine Feature, Therapeutic Pipeline Updates, and more
Sign-up to receive the UMDF newsletter via email at Newsletter Signup. In early October, an FDA Advisory Committee voted 10-6 supporting...
Read moreA special message from UMDF for World Mitochondrial Disease Week 2024
This coming week, September 16 – 22, 2024, marks World Mitochondrial Disease Week. For me, the week is deeply personal. This year marks twenty...
Read moreEnergize the Fight – World Mitochondrial Disease Week 2024
We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World...
Read moreUMDF Reacts to Today’s Historic FDA Listening for the Mitochondrial Disease PDCD
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read moreLHON Awareness Day – Meet Michael Malecha, Mito Warrior
Story by Michael Malecha, Mito Warrior I learned in 7th grade that the mitochondria are the powerhouse of your cells. I didn’t really...
Read moreMitochondrial Disease Awareness Week 2021
Mitochondrial Disease Awareness Week – September 19-25, 2021 Monuments and Iconic Buildings ‘Light Up For Mito’ UMDF...
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