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Webinar – mitoSHARE – First Year Update: What We’ve Learned, and What Comes Next
March 29, 2023 @ 1:00 pm - 2:00 pm
mitoSHARE – First Year Update: What We’ve Learned, and What Comes Next
Tune in as Dr. Philip Yeske, UMDF’s Science & Alliance Officer and Nicole Wilson, mitoSHARE Registry Coordinator, gives an update on UMDF’s patient registry, mitoSHARE, one year after the platform’s launch. Dr. Yeske and Nicole will also provide a primer on the importance of patient registries like mitoSHARE, outline what we’ve already learned, and preview what comes next, including the next generation of surveys and their importance for researchers. The webinar will be followed by a question and answer session. Current and prospective mitoSHARE members are encouraged to attend. A video recording of the webinar will be available on Mito University.
As a reminder, mitoSHARE is a worldwide research database for patients (both living and deceased) with any form of mitochondrial disease as well as their caregivers. A confirmed diagnosis of mitochondrial disease is not required in order to join mitoSHARE. Patients at any stage of the “diagnostic journey” are encouraged to register. All are welcome!
