Patients & Families are Our Focus
Our Mission
Promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.
ambassadors across the US to support patient families
research labs with funded projects
million dollars generated in goverment grants as a result of our investment
ambassadors across the US to support patient families
research labs with funded projects
million dollars generated in goverment grants as a result of our investment
The work done through UMDF is making an impact. Our Community Impact Report shares courageous stories, difference makers and how your donations are put to work every day.
See our latest audited financial statements and Form 990 reports here.
Meet Our People
UMDF Leadership Team
Philip Yeske, PhD
Interim Managing Director and Science & Alliance Officer
Kara Strittmatter MA/CMM
Director of Education and Support Services
Maria Porto
Director of Finance & Operations
Andy Dearth
Director of Marketing & Communications
Tania Hanscom
Associate Director of Development
Margaret Moore
Associate Director of Support & Education
Bethany Bonner
Support &
Education Associate
Barb Cullaj
Administrative
Assistant
Cassie Franklin
Community Engagement
Specialist
Jeff Gamza
Multimedia
Manager
Monika Hancock
Development
Coordinator
Dan Meola
Database
Manager
Donna Nameth
Data Entry
Manager
Janet Owens
Executive Administrative
Assistant
Angela Sommer
Development
Coordinator
Nicole Wilson
Program
Manager
Board of Trustees
Scientific & Medical Advisory Board
Industry Advisory Council Leadership
Jack Black
John DiCecco
Salvatore DiMauro
Charles Hoppel
Dan Wright
