Advocacy Update – January 2024: New FDA Guidance Encouraging Sign for Rare Disease Patients
UMDF Advocacy Update – Dec. 2023 The House is scheduled to be out of session until January, while the Senate is scheduled to remain in...
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Advocacy Update – December 2023
UMDF Advocacy Update – Dec. 2023 The House is scheduled to be out of session until January, while the Senate is scheduled to remain in...
Read moreAdvocacy Update – November 2023: CMS Changes Definition of Medicare Caregiver in New Rule
Published 11/29/23 President Biden Signs Funding Bill, Averting a Government Shutdown On November 16, President Biden signed the stopgap...
Read moreLanguage Encouraging NIH to “Expand, Accelerate, and Collaborate” on Mito Research Makes it in HHS Appropriations Report
The House of Representatives wait for a new speaker has entered week three. Republicans returned to Washington earlier this week for a...
Read moreMarking #WorldMitoWeek Through Advocacy
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read moreUMDF Reacts to Today’s Historic FDA Listening for the Mitochondrial Disease PDCD
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
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