Mito Study Roundup: Studies Available for Patients, Caregivers
Mito Study Roundup: Studies Available for Patients, Caregivers Updated 8/22/24 We all want more and better therapies for mitochondrial disease,...
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Advocacy Update – November 2023: CMS Changes Definition of Medicare Caregiver in New Rule
Published 11/29/23 President Biden Signs Funding Bill, Averting a Government Shutdown On November 16, President Biden signed the stopgap...
Read moreLanguage Encouraging NIH to “Expand, Accelerate, and Collaborate” on Mito Research Makes it in HHS Appropriations Report
The House of Representatives wait for a new speaker has entered week three. Republicans returned to Washington earlier this week for a...
Read moreMarking #WorldMitoWeek Through Advocacy
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read moreUMDF Reacts to Today’s Historic FDA Listening for the Mitochondrial Disease PDCD
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read moreBack to School Resources for Mito Families
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
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