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DTSTART;VALUE=DATE:20250915
DTEND;VALUE=DATE:20250922
DTSTAMP:20260501T105739
CREATED:20241028T142657Z
LAST-MODIFIED:20241028T142657Z
UID:10003243-1757894400-1758499199@umdf.org
SUMMARY:World Mitochondrial Disease Week 2025
DESCRIPTION:
URL:https://umdf.org/event/world-mitochondrial-disease-week-2025/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250919
DTEND;VALUE=DATE:20250920
DTSTAMP:20260501T105739
CREATED:20250818T154236Z
LAST-MODIFIED:20250818T154236Z
UID:10004052-1758240000-1758326399@umdf.org
SUMMARY:LHON Awareness Day
DESCRIPTION:Join UMDF as we mark Leber hereditary optic neuropathy day!  \nLeber hereditary optic neuropathy (LHON) is a rare inherited mitochondrial disorder. Its primary symptom is sudden\, painless loss of central vision. The typical onset pattern is for one eye to become affected\, then the other eye to begin losing vision within a few weeks or months; though in rare cases\, the interval between eyes can be years or decades. Onset begins with a small scotoma (blurry spot) in or around the center of vision that rapidly gets larger over about eight months\, then stabilizes. The person affected experiences profound vision loss and legal blindness (visual acuity worse than 20/200). There is a wide range of outcomes in terms of how much peripheral vision remains\, but most individuals affected by LHON retain some peripheral vision and never become totally blind.
URL:https://umdf.org/event/lhon-awareness-day-3/
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DTSTART;TZID=America/New_York:20250919T200000
DTEND;TZID=America/New_York:20250919T210000
DTSTAMP:20260501T105739
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002124-1758312000-1758315600@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2025-09-19/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
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