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DTSTART;VALUE=DATE:20260914
DTEND;VALUE=DATE:20260921
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CREATED:20260416T141550Z
LAST-MODIFIED:20260807T191918Z
UID:10004465-1789344000-1789948799@umdf.org
SUMMARY:World Mitochondrial Disease Awareness Week 2026
DESCRIPTION:Sept. 14 – 20\, 2026 is World Mitochondrial Disease Awareness Week. \nFor more details\, visit our World Mitochondrial Disease Week page.
URL:https://umdf.org/event/world-mitochondrial-disease-awareness-week-2026/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T100000
DTEND;TZID=America/New_York:20260919T120000
DTSTAMP:20250206T185233Z
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10002985-1789812000-1789819200@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2026-09-19/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
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DTSTART;TZID=America/New_York:20260919T140000
DTEND;TZID=America/New_York:20260919T160000
DTSTAMP:20260910T125457Z
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UID:10004680-1789826400-1789833600@umdf.org
SUMMARY:New York City In-Person Support Group September 2026
DESCRIPTION:We’d love to invite you to a casual\, in-person support gathering for individuals and families impacted by mitochondrial disease here in New York City. \nLiving with mitochondrial disease can feel isolating at times\, but you are not alone. This gathering is an opportunity to connect with others who understand the journey—whether you’re a patient\, parent\, caregiver\, or loved one. \nWhat to expect: \n\nA brief mitochondrial disease overview with Michio Hirano\, MD.\nA relaxed\, informal setting\nTime to share experiences (only if you feel comfortable)\nConnection\, understanding\, and community\n\nDetails:\n📍 Location: Columbia Doctors Midtown\n51 W. 51st Street\n3rd Floor Conference Room\nNew York\, New York 10019 \n📅 Date: September 19\,2026\n⏰ Time: 2:00pm-4:00pm ET \nThere’s no agenda—just a chance to come together\, support one another\, and build meaningful connections. \nWhether this is your first time meeting others in the mitochondrial community or you’ve been connected for years\, we welcome you. \nPlease feel free to bring a friend\, family member\, or caregiver. \nIf you’re interested in attending or have any questions\, please reach out to Margaret Moore at margaret.moore@umdf.org \nWe hope to see you there! \n  \n 
URL:https://umdf.org/event/new-york-city-in-person-support-group-september-2026/
CATEGORIES:Education,Support Meeting
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