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DTSTART;TZID=America/New_York:20250113T120000
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UID:10003269-1736769600-1736773200@umdf.org
SUMMARY:UMDF Bench-to-Bedside Clinical Trials Update - Part 2
DESCRIPTION:UMDF Bench-to-Bedside – Clinical Trials Update – Part 2\n\nModerator: Philip Yeske\, PhD and Zuela Zolkipli Cunningham\, MD \nClick Here to Register  \nThe Effects of L-arginine on Cerebrovascular Reactivity\, Perfusion and Neurovascular Coupling in MELAS Syndrome \nSpeaker:  Ingrid Tein\, BSc\, MD\, FRCP(C) – Hospital for Sick Children (SickKids)\, Toronto\, CA\n \nClinical Trial Updates – Part 2 – Presenters: \n\n\n\n Fernando Scaglia\, MD – Baylor College of Medicine\, Houston\, TX\n Jan Smeitink\, MD\, PhD – Khondrion\n Chad Glasser\, PharmD\, MPH – Tisento Therapeutics\n Magnus Hansson\, MD\, PhD – Abliva\n\n\n\nTime: 12:00pm ET/11:00am CT/9:00a PT \n 
URL:https://umdf.org/event/umdf-bench-to-bedside-clinical-trials-update-part-2/
CATEGORIES:Ask the Mito Doc,Education,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
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DTSTART;TZID=America/New_York:20250115T190000
DTEND;TZID=America/New_York:20250115T200000
DTSTAMP:20260430T091815
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SUMMARY:UMDF Ask the Mito Doc Webcast Series – A Comprehensive Vision: Understanding Chronic Progressive External Ophthalmoplegia (CPEO) from the Eyes to the Body
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on January 15\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nA Comprehensive Vision: Understanding Chronic Progressive \nExternal Ophthalmoplegia (CPEO) from the Eyes to the Body\nSpeakers: \n\nZarazuela Zolkipli Cunningham\, MD\, Children’s Hospital of Philadelphia\nRustum Karanjia MD\, PhD\, University of Ottawa Eye Institute\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on January 15\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-cpeo-jan2025/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
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