BEGIN:VCALENDAR VERSION:2.0 PRODID:-//UMDF - ECPv6.15.20//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:UMDF X-ORIGINAL-URL:https://umdf.org X-WR-CALDESC:Events for UMDF REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20230312T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20231105T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20240310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20241103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20270314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20271107T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20260415T190000 DTEND;TZID=America/New_York:20260415T200000 DTSTAMP:20260430T103723 CREATED:20260127T020154Z LAST-MODIFIED:20260127T195457Z UID:10004344-1776279600-1776283200@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Genetics 101 DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers.  \n\nJoin us on April 15\, 2026\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nGenetics 101\n \nModerator: Margaret Moore\, UMDF Associate Director of Support & Education \nSpeaker: Fernando Scaglia\, MD\, Baylor College of Medicine\, Houston\, TX \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us April 15\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-genetics-101/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260320T120000 DTEND;TZID=America/New_York:20260320T130000 DTSTAMP:20260430T103723 CREATED:20260120T165910Z LAST-MODIFIED:20260120T170003Z UID:10004343-1774008000-1774011600@umdf.org SUMMARY:UMDF Ask the Mito Doc Special Webcast – Updates on New TK2d Therapy Kygevvi DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on March 20\, 2026\nat 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern \nClick Here to Register \nAgenda \n\nUMDF Ask the Mito Doc Special Webcast – Updates on New TK2d Therapy Kygevvi \nSpeaker – Sarah Chang\, PhD\, Medical Strategy Lead\, UCB \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us March 20\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-special-webcast-updates-tk2d-therapy-kygevvi/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260309T120000 DTEND;TZID=America/New_York:20260309T130000 DTSTAMP:20260430T103723 CREATED:20260119T234036Z LAST-MODIFIED:20260306T190202Z UID:10004342-1773057600-1773061200@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and Clinical Research Pavilion DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. NOTE: This is a combined UMDF Bench-to-Bedside and Ask the Mito Doc Webcast \n\nJoin us on March 9\, 2026\nat 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern \nClick Here to Register \nAgenda \n\nClinical Trial Readiness – Mito Med Conference Clinical Research Pavilion 2025 Learnings and Prepping for 2026\nNOTE: This is a combined UMDF Bench-to-Bedside and Ask the Mito Doc Webcast \nModerator: Amel Karaa\, MD \nSpeakers: \n\nZuela Zolkipli Cunningham\, MD\, Children’s Hospital of Philadelphia\nCarlo Tacconi\, CEO\, mHealth Technologies\, Bolgna\, Italy\nSabato Mellone\, PhD\, University of Bologna\, Italy\nDamiano Zanotto\, PhD\, Stevens Institute of Technology\, Hoboken\, NJ\nTony Adams\, MD\, Gentle Jogger\nNicole Wilson\, UMDF Program Manager\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us March 9\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-clinical-trial-readiness-crp/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260217T120000 DTEND;TZID=America/New_York:20260217T130000 DTSTAMP:20260430T103723 CREATED:20251126T100120Z LAST-MODIFIED:20260212T173124Z UID:10004299-1771329600-1771333200@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Understanding MELAS and Current Therapies/Treatments DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on February 17\, 2026\nat 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern \nClick Here to Register \nAgenda \n\nUnderstanding MELAS and Current Therapies/Treatments \nModerator: Margaret Moore\, UMDF Associate Director of Support & Education \nSpeaker: \n\nAmel Karaa\, MD\, Massachusetts General Hospital\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us February 17\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-understanding-melas/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260120T190000 DTEND;TZID=America/New_York:20260120T200000 DTSTAMP:20260430T103723 CREATED:20251126T095236Z LAST-MODIFIED:20251126T095236Z UID:10004298-1768935600-1768939200@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – CardiacMito 2026: Genetics and Clinical Insights to Jumpstart the Year DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on January 20\, 2026\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nCardiacMito 2026: Genetics and Clinical Insights to Jumpstart the Year \nModerator: Margaret Moore\, UMDF Associate Director of Support & Education \nSpeakers: \n\nHilary Vernon\, MD\, PhD\, Johns Hopkins University School of Medicine \nAndreas S. Barth\, MD\, PhD\, FAHA\, Johns Hopkins University \nRebecca McClellan\, MGC\, CGC\, Kennedy Krieger Institute\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us January 20\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-cardiacmito2026/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260105T120000 DTEND;TZID=America/New_York:20260105T130000 DTSTAMP:20260430T103723 CREATED:20251231T152559Z LAST-MODIFIED:20251231T185430Z UID:10004338-1767614400-1767618000@umdf.org SUMMARY:UMDF Bench-to-Bedside Clinical Trials Update - Part 2 DESCRIPTION:UMDF Bench-to-Bedside – Clinical Trials Update – Part 2\n\nModerator: Philip Yeske\, PhD and Amel Karaa\, MD \nClick Here to Register \nMitochondrial Disease Clinical Trial Updates – Part 2 \nSpeakers: \n\nPatrice Rioux\, PhD\, Co-Founder\, Director and CEO\, Thiogenesis Therapeutics\nRobert Fischer\, PhD\, CEO/CSO\, OMEICOS Therapeutics\nNiven R. Narain\, PhD\, President & CEO\, BPGBio\nAshish Dugar\, PhD\, MBA\, Chief Development Officer\, Pretzel Therapeutics\nSharon Hamm\, PharmD\, Senior Vice President\, Saol Therapeutics\nGiovanni Passiatore\,  Senior Director\, Medical Affairs\, Chiesi Global Rare Diseases\nDaniel DiPietro\, Co-Founder\, Pierrepont Therapeutics\n\n  \nTime: 12:00pm ET/11:00am CT/9:00a PT \n  URL:https://umdf.org/event/umdf-bench-to-bedside-clinical-trials-update-part-2-2026/ CATEGORIES:Ask the Mito Doc,Education,Support Meeting ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251217T190000 DTEND;TZID=America/New_York:20251217T200000 DTSTAMP:20260430T103723 CREATED:20251020T112918Z LAST-MODIFIED:20251104T142234Z UID:10004101-1765998000-1766001600@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Wrapping Up 2025 with our Mito Docs DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on December 17\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nWrapping Up 2025 with our Mito Docs \nModerator: Margaret Moore\, UMDF Associate Director of Support & Education \nSpeakers: \n\nGregory Enns\, MD\, Stanford Medicine\, Palo Alto\, CA\nBruce Cohen\, MD\, Akron Children’s Hospital\nJaya Ganesh\, MD\, Icahn School of Medicine at Mount Sinai\, New York\, NY\nMatthew Snyder\, MD\, University of Virginia Health\, Charlottesville\, VA\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us December 17\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-wrapping-up-2025/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251125T110000 DTEND;TZID=America/New_York:20251125T120000 DTSTAMP:20260430T103723 CREATED:20251105T124340Z LAST-MODIFIED:20251105T181434Z UID:10004158-1764068400-1764072000@umdf.org SUMMARY:UMDF Ask the Mito Doc Special Webcast – Focused on TK2d Therapy Kygevvi with Dr. Michio Hirano DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on November 25\, 2025\nat 8:00am Pacific/9:00am Mountain/10:00am Central/11:00am Eastern \nClick Here to Register \nAgenda \n\nUMDF Ask the Mito Doc Special Webcast – Focused on TK2d Therapy Kygevvi with Dr. Michio Hirano \nSpeaker – Michio Hirano\, MD\, Columbia University\, New York\, NY \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us November 25\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-special-webcast-focused-on-tk2d-therapy-kygevvi-with-dr-michio-hirano/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251113T190000 DTEND;TZID=America/New_York:20251113T200000 DTSTAMP:20260430T103723 CREATED:20250827T141929Z LAST-MODIFIED:20251107T225121Z UID:10004056-1763060400-1763064000@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Genetic Testing in Mitochondrial Disease: What Patients and Families Need to Know DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on November 13\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nGenetic Testing in Mitochondrial Disease: What Patients and Families Need to Know \nIn honor of National Genetic Counselor Awareness Day\, we look forward to shining a light on Genetic Counseling and learn more about genetic testing. \nModerator: Divakar Mithal\, MD\, PhD\, Ann & Robert H. Lurie Children’s Hospital of Chicago \nSpeakers: \n\nErin McGinnis\, MS\, CGC\, Ann & Robert H. Lurie Children’s Hospital of Chicago\, Chicago\, IL\nRebecca McClellan\, MGC\, CGC\, Kennedy Krieger Institute\, Baltimore\, MD\nColleen Clarke Muraresku\, MS\, LCGC\, Children’s Hospital of Philadelphia\, Philadelphia\, PA\nAndy McCarty\, MS\, CGC\, Clover Genetics\, Pittsburgh\, PA\nLiz Mizerik\, MS\, CGC\, Baylor College of Medicine/Texas Children’s Hospital\, Houston\, TX\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us November 13\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-genetic-testing2025/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251029T190000 DTEND;TZID=America/New_York:20251029T200000 DTSTAMP:20260430T103723 CREATED:20250827T141104Z LAST-MODIFIED:20250827T141104Z UID:10004055-1761764400-1761768000@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Fact vs. Fiction: Sorting Science from Speculation in Mito Treatment DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on Otober 29\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nFact vs. Fiction: Sorting Science from Speculation in Mito Treatment\nA discussion that aims to debunk myths and educate families on therapies such as HBOT\, Methylene Blue\, Red Light Therapy\, Stem Cell applications\, Fluoroquinolones\, and more. Sharing the pros and cons of such therapies. \nSpeakers: \n\nEva Morava-Kozicz\, MD\, PhD\, Icahn School of Medicine at Mount Sinai\, New York\, NY\nTamas Kozicz\, MD\, PhD\, Icahn School of Medicine at Mount Sinai\, New York\, NY \nIbrahim Elsharkawi\, MD\, Icahn School of Medicine at Mount Sinai\, New York\, NY\nAmy Goldstein\, MD\, Children’s Hospital of Philadelphia\, Philadelphia\, PA\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us October 29\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-fact-vs-fiction-mitotreatments/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250916T190000 DTEND;TZID=America/New_York:20250916T200000 DTSTAMP:20260430T103723 CREATED:20250811T145139Z LAST-MODIFIED:20250811T153901Z UID:10004051-1758049200-1758052800@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Seizures in Patients with Mito DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on September 16\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nSeizure Management in Patients with Mitochondrial Disease\nSpeakers: \n\nRussell Saneto\, DO\, PhD\, Seattle Children’s Hospital\, Seattle\, Washington\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us September 16\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-seizuresinmito/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250618 DTEND;VALUE=DATE:20250622 DTSTAMP:20260430T103723 CREATED:20240102T165412Z LAST-MODIFIED:20250510T201650Z UID:10002642-1750204800-1750550399@umdf.org SUMMARY:UMDF Mitochondrial Medicine 2025 in St. Louis\, MO DESCRIPTION:Save the DATE to join us June 18-21\, 2025 – \nHyatt Regency St. Louis Arch\nVisit umdfconference.org for details.\nQuestions? Email: mitomed@umdf.org URL:https://umdf.org/event/umdf-mitochondrial-medicine-2025-in-st-louis-mo/ LOCATION:Hyatt Regency St. Louis Arch\, 315 CHESTNUT STREET\, ST LOUIS\, MO\, MO\, 63102\, United States CATEGORIES:Ask the Mito Doc,Education,Scientific Meeting,Support Meeting ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250513T120000 DTEND;TZID=America/New_York:20250513T130000 DTSTAMP:20260430T103723 CREATED:20250311T024125Z LAST-MODIFIED:20250413T191503Z UID:10003838-1747137600-1747141200@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Mitochondrial Disease and Biorepositories: Why Participation Matters DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on May 13\, 2025\nat 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern \nClick Here to Register \nAgenda \n\nMitochondrial Disease and Biorepositories: Why Participation Matters\nSpeakers: \n\nAmel Karaa\, MD\, Massachusetts General Hospital\nSasha Elmizadeh\, Biorepository Manager\, COMBINEDBrain\nAnna Pfalzer\, PhD\, Chief Science Officer\, COMBINEDBrain\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us on May 13\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-mitochondrial-disease-and-biorepositories-why-participation-matters/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250430T190000 DTEND;TZID=America/New_York:20250430T200000 DTSTAMP:20260430T103723 CREATED:20250204T005038Z LAST-MODIFIED:20250204T174431Z UID:10003626-1746039600-1746043200@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Integrating Physical and Emotional Pain Management in Mitochondrial Disease Care DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on April 30\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nIntegrating Physical and Emotional Pain Management in Mitochondrial Disease Care\nSpeakers: \n\nGail Reiner\, DNP\, FNP-C\, University of California San Diego \nRichard Haas\, MD\, University of California San Diego \nJennifer Yang\, MD\, Rady Children’s Hospital San Diego\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us on April 30\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-chronic-pain-mitodisease/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250310T120000 DTEND;TZID=America/New_York:20250310T130000 DTSTAMP:20260430T103723 CREATED:20250121T035333Z LAST-MODIFIED:20250304T144851Z UID:10003560-1741608000-1741611600@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and UMDF Mito Med Clinical Research Pavilion Update DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on March 10\, 2025\nat 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern \nClick Here to Register \nAgenda \n\nClinical Trial Readiness and UMDF Mito Med Clinical Research Pavilion Update\nWe are dedicating March’s UMDF Bench-to-Bedside and the UMDF Ask the Mito Doc Webcasts to Clinical Trial Readiness. Instead of two separate webcasts\, we will combine the clinician Bench-to-Bedside with the patient/family Ask the Mito Doc into ONE webcast. The combined webcast will take place from 12:00-1:00PM ET on March 10th. The audience will be a mix of patients\, researchers\, clinicians and industry.\n\n\n\nTentative Agenda: \nUMDF Mito Medicine Conference Clinical Research Pavilion (CRP) 2024 readouts and preview of what to expect in the CRP in St. Louis in June 2025 \n\n\n\nDr. Zuela Zolkipli Cunningham and the CHOP Team\nDr. Tony Adams\nDr. Damiano Zanotto \nDr. Philip Yeske\nNicole Wilson\n\n\n\n  \n\n\nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-clinical-trial-readiness-and-umdf-mito-med-clinical-research-pavilion-update/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250212T190000 DTEND;TZID=America/New_York:20250212T200000 DTSTAMP:20260430T103723 CREATED:20241112T232953Z LAST-MODIFIED:20241113T143155Z UID:10003247-1739386800-1739390400@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Comprehensive Care in Kearns-Sayre and Pearson Syndromes: Diagnosis\, Symptom Management\, and Support Strategies DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on February 12\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick here to Register \nAgenda \n\nComprehensive Care in Kearns-Sayre and Pearson Syndromes:\nDiagnosis\, Symptom Management\, and Support Strategies\nSpeakers: \n\nRebecca Ganetzky\, MD\, Children’s Hospital of Philadelphia\nSumit Parikh MD\, The Cleveland Clinic\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on February 12\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-comprehensive-care-kss-pearson/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250115T190000 DTEND;TZID=America/New_York:20250115T200000 DTSTAMP:20260430T103723 CREATED:20241025T152436Z LAST-MODIFIED:20241025T153813Z UID:10003242-1736967600-1736971200@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – A Comprehensive Vision: Understanding Chronic Progressive External Ophthalmoplegia (CPEO) from the Eyes to the Body DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on January 15\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nA Comprehensive Vision: Understanding Chronic Progressive \nExternal Ophthalmoplegia (CPEO) from the Eyes to the Body\nSpeakers: \n\nZarazuela Zolkipli Cunningham\, MD\, Children’s Hospital of Philadelphia\nRustum Karanjia MD\, PhD\, University of Ottawa Eye Institute\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on January 15\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-cpeo-jan2025/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250113T120000 DTEND;TZID=America/New_York:20250113T130000 DTSTAMP:20260430T103723 CREATED:20241122T181042Z LAST-MODIFIED:20241211T093657Z UID:10003269-1736769600-1736773200@umdf.org SUMMARY:UMDF Bench-to-Bedside Clinical Trials Update - Part 2 DESCRIPTION:UMDF Bench-to-Bedside – Clinical Trials Update – Part 2\n\nModerator: Philip Yeske\, PhD and Zuela Zolkipli Cunningham\, MD \nClick Here to Register \nThe Effects of L-arginine on Cerebrovascular Reactivity\, Perfusion and Neurovascular Coupling in MELAS Syndrome \nSpeaker:  Ingrid Tein\, BSc\, MD\, FRCP(C) – Hospital for Sick Children (SickKids)\, Toronto\, CA\n \nClinical Trial Updates – Part 2 – Presenters: \n\n\n\n Fernando Scaglia\, MD – Baylor College of Medicine\, Houston\, TX\n Jan Smeitink\, MD\, PhD – Khondrion\n Chad Glasser\, PharmD\, MPH – Tisento Therapeutics\n Magnus Hansson\, MD\, PhD – Abliva\n\n\n\nTime: 12:00pm ET/11:00am CT/9:00a PT \n  URL:https://umdf.org/event/umdf-bench-to-bedside-clinical-trials-update-part-2/ CATEGORIES:Ask the Mito Doc,Education,Support Meeting ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241211T190000 DTEND;TZID=America/New_York:20241211T200000 DTSTAMP:20260430T103723 CREATED:20241005T125816Z LAST-MODIFIED:20241005T130539Z UID:10003238-1733943600-1733947200@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Wrapping Up 2024 with the Mito Docs DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on December 11\, 2024\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nWrapping Up 2024 with the Mito Docs\nSpeakers: \n\nAmy Goldstein\, MD\, Children’s Hospital of Philadelphia\nHilary Vernon\, MD\, PhD\, Johns Hopkins University\nMatthew Snyder\, MD\, University of Virginia\nRussell Saneto\, DO\, PhD\, Seattle Children’s Hospital\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on December 11\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-wrapping-up-2024/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241120T190000 DTEND;TZID=America/New_York:20241120T200000 DTSTAMP:20260430T103723 CREATED:20240814T022843Z LAST-MODIFIED:20240814T022843Z UID:10003075-1732129200-1732132800@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Understanding POLG Disorders DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on November 20\, 2024\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nUnderstanding POLG Disorders: A Dual Perspective on Research and Clinical Practice\nSpeakers: \n\nWilliam Copeland\, PhD\, National Institute of Environmental Health Sciences (NIEHS)\, Research Triangle Park\, NC\nBruce Cohen\, MD\, Akron Children’s Hospital\, Akron\, OH\n\n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on November 20\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-understanding-polg/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20241023T190000 DTEND;TZID=America/New_York:20241023T200000 DTSTAMP:20260430T103723 CREATED:20240903T235835Z LAST-MODIFIED:20240903T235835Z UID:10003088-1729710000-1729713600@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Connecting the Dots DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on October 23\, 2024\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nConnecting the Dots Between Common Mitochondrial Diseases and Ultra Rare Diseases\nSpeakers: \n\nAndrea Gropman\, MD\, St. Jude Childrens Research Hospital\, Memphis\, TN\nBharatendu Chandra\, MD\, University of Iowa\, Iowa City\, IA\n\n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on October 23\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-connecting-the-dots/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240912T193000 DTEND;TZID=America/New_York:20240912T203000 DTSTAMP:20260430T103723 CREATED:20240619T021100Z LAST-MODIFIED:20240826T222516Z UID:10003056-1726169400-1726173000@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Understanding Genetic Testing DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on September 12\, 2024\nat 4:30pm Pacific/5:30pm Mountain/6:30pm Central/7:30pm Eastern \nClick Here to Register \nAgenda \n\nUnderstanding Genetic Testing\nSpeakers:\nAustin Larson\, MD\, Children’s Hospital of Colorado\, Aurora\, CO\nEva Morava-Kozicz\, MD\, PhD\, Icahn School of Medicine at Mount Sinai\, New York\, NY\nIbrahim Elsharkawi\, MD\, Icahn School of Medicine at Mount Sinai\, New York\, NY \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on September 12\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-understandinggt2024/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240627T160000 DTEND;TZID=America/New_York:20240627T173000 DTSTAMP:20260430T103723 CREATED:20240619T022354Z LAST-MODIFIED:20240619T022355Z UID:10002940-1719504000-1719509400@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – UMDF Mito Med 2024 Ask the Mito Doc Session - Virtual Option DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on June 27\, 2024\nat 1:00pm Pacific/3:00pm Central/4:00pm Eastern \nClick Here to Register \nAgenda \n\nUMDF Mitochondrial Medicine 2024\nAsk the Mito Doc Panel Session – Virtual Option\nSpeakers:\nTBD \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on June 27\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-mitomed2024askmitodoc-2/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240529T190000 DTEND;TZID=America/New_York:20240529T200000 DTSTAMP:20260430T103723 CREATED:20240122T224406Z LAST-MODIFIED:20240122T230204Z UID:10002939-1717009200-1717012800@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Mitochondrial Disease Primer DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on May 29\, 2024\nat 4:00pm Pacific/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nMitochondrial Disease Primer\nSpeaker:\nMelissa Walker\, MD\, PhD\, Massachusetts General Hospital\, Boston\, MA \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on May 29\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-mitoprimer2024/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240430T190000 DTEND;TZID=America/New_York:20240430T200000 DTSTAMP:20260430T103723 CREATED:20240116T142229Z LAST-MODIFIED:20240116T142244Z UID:10002875-1714503600-1714507200@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – MELAS 101 DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on April 30\, 2024\nat 4:00pm Pacific/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nMELAS 101\nSpeakers:\nMichio Hirano\, MD\, Columbia University\, New York\, NY\nFernando Scaglia\, MD\, Baylor College of Medicine\, Houston\, TX \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com. \nClick Here to Submit Your Question! \nWe hope you can join us on April 30\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-melas-2/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT END:VCALENDAR