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DTSTART;TZID=America/New_York:20250513T120000
DTEND;TZID=America/New_York:20250513T130000
DTSTAMP:20260430T124438
CREATED:20250311T024125Z
LAST-MODIFIED:20250413T191503Z
UID:10003838-1747137600-1747141200@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Mitochondrial Disease and Biorepositories: Why Participation Matters
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on May 13\, 2025\nat 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern \nClick Here to Register \nAgenda \n\nMitochondrial Disease and Biorepositories: Why Participation Matters\nSpeakers: \n\nAmel Karaa\, MD\, Massachusetts General Hospital\nSasha Elmizadeh\, Biorepository Manager\, COMBINEDBrain\nAnna Pfalzer\, PhD\, Chief Science Officer\, COMBINEDBrain\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us on May 13\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-mitochondrial-disease-and-biorepositories-why-participation-matters/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250430T190000
DTEND;TZID=America/New_York:20250430T200000
DTSTAMP:20260430T124438
CREATED:20250204T005038Z
LAST-MODIFIED:20250204T174431Z
UID:10003626-1746039600-1746043200@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Integrating Physical and Emotional Pain Management in Mitochondrial Disease Care
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on April 30\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nIntegrating Physical and Emotional Pain Management in Mitochondrial Disease Care\nSpeakers: \n\nGail Reiner\, DNP\, FNP-C\, University of California San Diego \nRichard Haas\, MD\, University of California San Diego \nJennifer Yang\, MD\, Rady Children’s Hospital San Diego\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us on April 30\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-chronic-pain-mitodisease/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250310T120000
DTEND;TZID=America/New_York:20250310T130000
DTSTAMP:20260430T124438
CREATED:20250121T035333Z
LAST-MODIFIED:20250304T144851Z
UID:10003560-1741608000-1741611600@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and UMDF Mito Med Clinical Research Pavilion Update
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on March 10\, 2025\nat 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern \nClick Here to Register \nAgenda \n\nClinical Trial Readiness and UMDF Mito Med Clinical Research Pavilion Update\nWe are dedicating March’s UMDF Bench-to-Bedside and the UMDF Ask the Mito Doc Webcasts to Clinical Trial Readiness. Instead of two separate webcasts\, we will combine the clinician Bench-to-Bedside with the patient/family Ask the Mito Doc into ONE webcast. The combined webcast will take place from 12:00-1:00PM ET on March 10th. The audience will be a mix of patients\, researchers\, clinicians and industry.\n\n\n\nTentative Agenda: \nUMDF Mito Medicine Conference Clinical Research Pavilion (CRP) 2024 readouts and preview of what to expect in the CRP in St. Louis in June 2025 \n\n\n\nDr. Zuela Zolkipli Cunningham and the CHOP Team\nDr. Tony Adams\nDr. Damiano Zanotto \nDr. Philip Yeske\nNicole Wilson\n\n\n\n  \n\n\nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-clinical-trial-readiness-and-umdf-mito-med-clinical-research-pavilion-update/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250212T190000
DTEND;TZID=America/New_York:20250212T200000
DTSTAMP:20260430T124438
CREATED:20241112T232953Z
LAST-MODIFIED:20241113T143155Z
UID:10003247-1739386800-1739390400@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Comprehensive Care in Kearns-Sayre and Pearson Syndromes: Diagnosis\, Symptom Management\, and Support Strategies
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on February 12\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick here to Register \nAgenda \n\nComprehensive Care in Kearns-Sayre and Pearson Syndromes:\nDiagnosis\, Symptom Management\, and Support Strategies\nSpeakers: \n\nRebecca Ganetzky\, MD\, Children’s Hospital of Philadelphia\nSumit Parikh MD\, The Cleveland Clinic\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on February 12\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-comprehensive-care-kss-pearson/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250115T190000
DTEND;TZID=America/New_York:20250115T200000
DTSTAMP:20260430T124438
CREATED:20241025T152436Z
LAST-MODIFIED:20241025T153813Z
UID:10003242-1736967600-1736971200@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – A Comprehensive Vision: Understanding Chronic Progressive External Ophthalmoplegia (CPEO) from the Eyes to the Body
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on January 15\, 2025\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nA Comprehensive Vision: Understanding Chronic Progressive \nExternal Ophthalmoplegia (CPEO) from the Eyes to the Body\nSpeakers: \n\nZarazuela Zolkipli Cunningham\, MD\, Children’s Hospital of Philadelphia\nRustum Karanjia MD\, PhD\, University of Ottawa Eye Institute\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on January 15\, 2025.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-cpeo-jan2025/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250113T120000
DTEND;TZID=America/New_York:20250113T130000
DTSTAMP:20260430T124438
CREATED:20241122T181042Z
LAST-MODIFIED:20241211T093657Z
UID:10003269-1736769600-1736773200@umdf.org
SUMMARY:UMDF Bench-to-Bedside Clinical Trials Update - Part 2
DESCRIPTION:UMDF Bench-to-Bedside – Clinical Trials Update – Part 2\n\nModerator: Philip Yeske\, PhD and Zuela Zolkipli Cunningham\, MD \nClick Here to Register  \nThe Effects of L-arginine on Cerebrovascular Reactivity\, Perfusion and Neurovascular Coupling in MELAS Syndrome \nSpeaker:  Ingrid Tein\, BSc\, MD\, FRCP(C) – Hospital for Sick Children (SickKids)\, Toronto\, CA\n \nClinical Trial Updates – Part 2 – Presenters: \n\n\n\n Fernando Scaglia\, MD – Baylor College of Medicine\, Houston\, TX\n Jan Smeitink\, MD\, PhD – Khondrion\n Chad Glasser\, PharmD\, MPH – Tisento Therapeutics\n Magnus Hansson\, MD\, PhD – Abliva\n\n\n\nTime: 12:00pm ET/11:00am CT/9:00a PT \n 
URL:https://umdf.org/event/umdf-bench-to-bedside-clinical-trials-update-part-2/
CATEGORIES:Ask the Mito Doc,Education,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241211T190000
DTEND;TZID=America/New_York:20241211T200000
DTSTAMP:20260430T124438
CREATED:20241005T125816Z
LAST-MODIFIED:20241005T130539Z
UID:10003238-1733943600-1733947200@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Wrapping Up 2024 with the Mito Docs
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on December 11\, 2024\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nWrapping Up 2024 with the Mito Docs\nSpeakers: \n\nAmy Goldstein\, MD\, Children’s Hospital of Philadelphia\nHilary Vernon\, MD\, PhD\, Johns Hopkins University\nMatthew Snyder\, MD\, University of Virginia\nRussell Saneto\, DO\, PhD\, Seattle Children’s Hospital\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on December 11\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-wrapping-up-2024/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241120T190000
DTEND;TZID=America/New_York:20241120T200000
DTSTAMP:20260430T124438
CREATED:20240814T022843Z
LAST-MODIFIED:20240814T022843Z
UID:10003075-1732129200-1732132800@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Understanding POLG Disorders
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on November 20\, 2024\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nUnderstanding POLG Disorders: A Dual Perspective on Research and Clinical Practice\nSpeakers: \n\nWilliam Copeland\, PhD\, National Institute of Environmental Health Sciences (NIEHS)\, Research Triangle Park\, NC\nBruce Cohen\, MD\, Akron Children’s Hospital\, Akron\, OH\n\n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on November 20\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-understanding-polg/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241023T190000
DTEND;TZID=America/New_York:20241023T200000
DTSTAMP:20260430T124438
CREATED:20240903T235835Z
LAST-MODIFIED:20240903T235835Z
UID:10003088-1729710000-1729713600@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Connecting the Dots
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on October 23\, 2024\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nConnecting the Dots Between Common Mitochondrial Diseases and Ultra Rare Diseases\nSpeakers: \n\nAndrea Gropman\, MD\, St. Jude Childrens Research Hospital\, Memphis\, TN\nBharatendu Chandra\, MD\, University of Iowa\, Iowa City\, IA\n\n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on October 23\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-connecting-the-dots/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240912T193000
DTEND;TZID=America/New_York:20240912T203000
DTSTAMP:20260430T124438
CREATED:20240619T021100Z
LAST-MODIFIED:20240826T222516Z
UID:10003056-1726169400-1726173000@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Understanding Genetic Testing
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on September 12\, 2024\nat 4:30pm Pacific/5:30pm Mountain/6:30pm Central/7:30pm Eastern \nClick Here to Register \nAgenda \n\nUnderstanding Genetic Testing\nSpeakers:\nAustin Larson\, MD\, Children’s Hospital of Colorado\, Aurora\, CO\nEva Morava-Kozicz\, MD\, PhD\, Icahn School of Medicine at Mount Sinai\, New York\, NY\nIbrahim Elsharkawi\, MD\, Icahn School of Medicine at Mount Sinai\, New York\, NY \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on September 12\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-understandinggt2024/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240627T160000
DTEND;TZID=America/New_York:20240627T173000
DTSTAMP:20260430T124438
CREATED:20240619T022354Z
LAST-MODIFIED:20240619T022355Z
UID:10002940-1719504000-1719509400@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – UMDF Mito Med 2024 Ask the Mito Doc Session - Virtual Option
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on June 27\, 2024\nat 1:00pm Pacific/3:00pm Central/4:00pm Eastern \nClick Here to Register \nAgenda \n\nUMDF Mitochondrial Medicine 2024\nAsk the Mito Doc Panel Session – Virtual Option\nSpeakers:\nTBD \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on June 27\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-mitomed2024askmitodoc-2/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240529T190000
DTEND;TZID=America/New_York:20240529T200000
DTSTAMP:20260430T124438
CREATED:20240122T224406Z
LAST-MODIFIED:20240122T230204Z
UID:10002939-1717009200-1717012800@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Mitochondrial Disease Primer
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on May 29\, 2024\nat 4:00pm Pacific/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nMitochondrial Disease Primer\nSpeaker:\nMelissa Walker\, MD\, PhD\, Massachusetts General Hospital\, Boston\, MA \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on May 29\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-mitoprimer2024/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240430T190000
DTEND;TZID=America/New_York:20240430T200000
DTSTAMP:20260430T124438
CREATED:20240116T142229Z
LAST-MODIFIED:20240116T142244Z
UID:10002875-1714503600-1714507200@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – MELAS 101
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on April 30\, 2024\nat 4:00pm Pacific/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nMELAS 101\nSpeakers:\nMichio Hirano\, MD\, Columbia University\, New York\, NY\nFernando Scaglia\, MD\, Baylor College of Medicine\, Houston\, TX \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on April 30\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-melas-2/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
END:VCALENDAR