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DTSTART;TZID=America/New_York:20240912T193000
DTEND;TZID=America/New_York:20240912T203000
DTSTAMP:20260525T084121
CREATED:20240619T021100Z
LAST-MODIFIED:20240826T222516Z
UID:10003056-1726169400-1726173000@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Understanding Genetic Testing
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on September 12\, 2024\nat 4:30pm Pacific/5:30pm Mountain/6:30pm Central/7:30pm Eastern \nClick Here to Register \nAgenda \n\nUnderstanding Genetic Testing\nSpeakers:\nAustin Larson\, MD\, Children’s Hospital of Colorado\, Aurora\, CO\nEva Morava-Kozicz\, MD\, PhD\, Icahn School of Medicine at Mount Sinai\, New York\, NY\nIbrahim Elsharkawi\, MD\, Icahn School of Medicine at Mount Sinai\, New York\, NY \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on September 12\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-understandinggt2024/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
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DTSTART;VALUE=DATE:20240916
DTEND;VALUE=DATE:20240923
DTSTAMP:20260525T084121
CREATED:20240820T163612Z
LAST-MODIFIED:20240820T163810Z
UID:10003076-1726444800-1727049599@umdf.org
SUMMARY:World Mitochondrial Disease Awareness Week
DESCRIPTION:Energize the Fight – World Mitochondrial Disease Week 2024 \nWe’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease Week\, September 16-22\, 2024! Together\, we can promote understanding and recognition with the hope that increased awareness\, attention\, and funds will move the needle toward effective treatments and cures for the entire mito community. \nTK2d Tuesday – September 10 \nUMDF Virtual Capitol Hill Day – September 17\nLHON Awareness Day – September 19\nFDA Listening Meeting on Genetic Therapy Treatments for Rare Diseases – September 20\, 11am-4:30pm ET\nGlobal Light Up for Mito – September 21 \nMore info on global events and initiatives: mitochondrialdiseaseweek.org  \n  \n  \nEnergize the Fight – World Mitochondrial Disease Week 2024
URL:https://umdf.org/event/world-mitochondrial-disease-awareness-week-3/
CATEGORIES:Education,Family Friendly,Fundraising,Give Back,Support Meeting
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