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UID:10004682-1793098800-1793102400@umdf.org
SUMMARY:Breakfast Club Virtual Support Group 2026
DESCRIPTION:Start your day right with a morning support group! This group is for everyone! If you are a parent\, caregiver or affected individual\, please join us! We are better TOGETHER! \nUMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend.\nSeptember 29\,2026• 11:00am – 1:00pm Eastern \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or \n412-744-1061 Ext 105\n. \nVisit the UMDF Event Calendar for all updates and upcoming events here. 
URL:https://umdf.org/event/breakfast-club-virtual-support-group-2026/2026-10-27/
CATEGORIES:Education,Support Meeting
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UID:10004601-1793127600-1793131200@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Understanding Access to Therapies: Compassionate Use\, Expanded Access\, and Off-Label Treatment in Mitochondrial Disease
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers.  \n\nJoin us on October 27\, 2026\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nUnderstanding Access to Therapies: Compassionate Use\, Expanded Access\, and Off-Label Treatment in Mitochondrial Disease \nModerator: Margaret Moore\, UMDF Associate Director of Support & Education \nSpeakers: Austin Larson\, MD\, Children’s Hospital Colorado\, Aurora\, Colorado\, Philip Yeske\, PhD\, UMDF Science & Alliance Officer\, Margaret Moore\, UMDF Associate Director of Support & Education\, and others TBD \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us October 27\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-understanding-access-to-therapies/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
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