Education
Mitochondrial Medicine 2023: NC Kick-Off Meeting
Mitochondrial Medicine 2023 is coming to Charlotte! Have you always wanted to attend the UMDF Symposium but couldn't travel? Mitochondrial Medicine 2023 will be right in your backyard. This is your year! Mitochondrial Medicine 2023 NC Mitochondrial Medicine 2023 Kick-Off Join us on Tuesday, May 9,2023 at 7:00pm ET. You can register here Agenda What to expect […]
UMDF Ask the Mito Doc Webcast Series – Special Session for the Newly Diagnosed
We are thrilled to have this group of speakers back to present a session for the newly diagnosed. However, whether newly diagnosed or not - this is a GREAT primer.
UMDF Mitochondrial Medicine 2023 in Charlotte, NC
Sheraton & Le Meridien Charlotte Hotel Complex 555 South McDowell Street, Charlotte, NC, United StatesJoin us in Charlotte, North Carolina, as we bring together the best minds in mitochondrial medicine and the patients we serve.
UMDF Ask the Mito Doc Webcast Series – UMDF Mitochondrial Medicine 2023 – July 1
Join us LIVE virtually at the UMDF Mitochondrial Medicine 2023 for this month's Ask the Mito Doc.
Navigating Education with LHON
NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who would benefit from this discussion to join […]
UMDF/MitoAction – Voice of the Pyruvate Dehydrogenase Complex Deficiency (PDCD) FDA Listening Session
The U.S. Food and Drug Administration (FDA) has just confirmed a virtual FDA listening session, co-hosted by the United Mitochondrial Disease Foundation and MitoAction, focused on Pyruvate Dehydrogenase Complex Deficiency (PDCD). The session, The Voice of the Pyruvate Dehydrogenase Complex Deficiency (PDCD) Patient Community, will be held virtually on Friday, September 8, 2023 from 1:00pm to 2:30pm ET. FDA listening sessions […]
World Mitochondrial Disease Awareness Week
Join friends and families from around the world on September 18-24, 2023 to raise awareness of mitochondrial disease (mito) on a global scale through educational, fundraising and advocacy activities.
CHOP 4th annual Mitochondrial Medicine Education Day
Children’s Hospital of Philadelphia (CHOP) is hosting this full-day virtual event for clinicians, researchers and others who care for patients with complex mitochondrial disorders. Speakers will include world-renowned mitochondrial disease clinicians and researchers from CHOP, the University of Pennsylvania and other organizations. Click Here for Details!
UMDF Ask the Mito Doc Webcast Series – Best Practices within a Mitochondrial Care Network Team – Navigating Patient Care
We are exciting to kick off the fall Ask the Mito Doc Monthly webcast series with one of the Mitochondrial Care Network Teams - join us and have your questions ready!
UMDF and MEPAN – Special Virtual Meet the Researcher Webcast
Join us Thursday, September 21 at 11:00 AM ET/10:00 AM CT/8:00 AM PT Click Here to Register The UMDF is working with our MEPAN families to organize this special virtual webcast to share information from this past June's meeting in Charlotte. Speakers and/or scientific attendees with an interest or experience with Mito Transfer/Fatty Acid Synthesis […]
CHOP 4th Annual Next Generation Therapeutics Virtual Panel
For the past three years, the Mitochondrial Medicine team from Children’s Hospital of Philadelphia (CHOP) has convened a virtual Next Generation Therapeutics panel to spark discussion between clinicians, industry leaders, patients and families affected by mitochondrial disease. CHOP is thrilled to host the 4th Annual Next Generation Therapeutics Virtual Panel, presented by UCB, from 10 a.m. to noon […]
UMDF Ask the Mito Doc Webcast Series – Diet, Nutrition and Nutraceuticals for the Mitochondrial Disease Patient
Diet and Nutrition is extremely important to the mitochondrial disease patient. Join us to hear from Dr. Mark Tarnopolsky, an expert in diet, nutrition, and nutraceuticals.