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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241209T120000
DTEND;TZID=America/New_York:20241209T130000
DTSTAMP:20260430T053839
CREATED:20241122T180552Z
LAST-MODIFIED:20241203T204818Z
UID:10003268-1733745600-1733749200@umdf.org
SUMMARY:UMDF Bench-to-Bedside Clinical Trials Update - Part 1
DESCRIPTION:UMDF Bench-to-Bedside – Clinical Trials Update – Part 1\n\nModerators: Amel Karaa\, MD and Philip Yeske\, PhD \nClick Here to Register \n\nNatalie Yivgi Ohana\, PhD – Minovia Therapeutics\nRobert Fischer\, MD\, PhD – OMEICOS\nPatrice Rioux\, MD\, PhD – Thiogenesis Therapeutics\nVijay Modur\, MD\, PhD – BPGbio Inc.\nSharon Hamm\, Pharm D – Saol Therapeutics\nSusan VanMeter\, MD – UCB\nKaties Landes\, Executive Director – Stealth BioTherapeutics\n\nTime: 12:00pm ET/11:00am CT/9:00a PT \n 
URL:https://umdf.org/event/umdf-bench-to-bedside-clinical-trials-update-part-1/
CATEGORIES:Education,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241120T190000
DTEND;TZID=America/New_York:20241120T200000
DTSTAMP:20260430T053839
CREATED:20240814T022843Z
LAST-MODIFIED:20240814T022843Z
UID:10003075-1732129200-1732132800@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Understanding POLG Disorders
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on November 20\, 2024\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nUnderstanding POLG Disorders: A Dual Perspective on Research and Clinical Practice\nSpeakers: \n\nWilliam Copeland\, PhD\, National Institute of Environmental Health Sciences (NIEHS)\, Research Triangle Park\, NC\nBruce Cohen\, MD\, Akron Children’s Hospital\, Akron\, OH\n\n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on November 20\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-understanding-polg/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241023T190000
DTEND;TZID=America/New_York:20241023T200000
DTSTAMP:20260430T053839
CREATED:20240903T235835Z
LAST-MODIFIED:20240903T235835Z
UID:10003088-1729710000-1729713600@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Connecting the Dots
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on October 23\, 2024\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nConnecting the Dots Between Common Mitochondrial Diseases and Ultra Rare Diseases\nSpeakers: \n\nAndrea Gropman\, MD\, St. Jude Childrens Research Hospital\, Memphis\, TN\nBharatendu Chandra\, MD\, University of Iowa\, Iowa City\, IA\n\n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on October 23\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-connecting-the-dots/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240916
DTEND;VALUE=DATE:20240923
DTSTAMP:20260430T053839
CREATED:20240820T163612Z
LAST-MODIFIED:20240820T163810Z
UID:10003076-1726444800-1727049599@umdf.org
SUMMARY:World Mitochondrial Disease Awareness Week
DESCRIPTION:Energize the Fight – World Mitochondrial Disease Week 2024 \nWe’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease Week\, September 16-22\, 2024! Together\, we can promote understanding and recognition with the hope that increased awareness\, attention\, and funds will move the needle toward effective treatments and cures for the entire mito community. \nTK2d Tuesday – September 10 \nUMDF Virtual Capitol Hill Day – September 17\nLHON Awareness Day – September 19\nFDA Listening Meeting on Genetic Therapy Treatments for Rare Diseases – September 20\, 11am-4:30pm ET\nGlobal Light Up for Mito – September 21 \nMore info on global events and initiatives: mitochondrialdiseaseweek.org  \n  \n  \nEnergize the Fight – World Mitochondrial Disease Week 2024
URL:https://umdf.org/event/world-mitochondrial-disease-awareness-week-3/
CATEGORIES:Education,Family Friendly,Fundraising,Give Back,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240912T193000
DTEND;TZID=America/New_York:20240912T203000
DTSTAMP:20260430T053839
CREATED:20240619T021100Z
LAST-MODIFIED:20240826T222516Z
UID:10003056-1726169400-1726173000@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Understanding Genetic Testing
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on September 12\, 2024\nat 4:30pm Pacific/5:30pm Mountain/6:30pm Central/7:30pm Eastern \nClick Here to Register \nAgenda \n\nUnderstanding Genetic Testing\nSpeakers:\nAustin Larson\, MD\, Children’s Hospital of Colorado\, Aurora\, CO\nEva Morava-Kozicz\, MD\, PhD\, Icahn School of Medicine at Mount Sinai\, New York\, NY\nIbrahim Elsharkawi\, MD\, Icahn School of Medicine at Mount Sinai\, New York\, NY \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on September 12\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-understandinggt2024/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240627T160000
DTEND;TZID=America/New_York:20240627T173000
DTSTAMP:20260430T053839
CREATED:20240619T022354Z
LAST-MODIFIED:20240619T022355Z
UID:10002940-1719504000-1719509400@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – UMDF Mito Med 2024 Ask the Mito Doc Session - Virtual Option
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on June 27\, 2024\nat 1:00pm Pacific/3:00pm Central/4:00pm Eastern \nClick Here to Register \nAgenda \n\nUMDF Mitochondrial Medicine 2024\nAsk the Mito Doc Panel Session – Virtual Option\nSpeakers:\nTBD \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on June 27\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-mitomed2024askmitodoc-2/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240626
DTEND;VALUE=DATE:20240630
DTSTAMP:20260430T053839
CREATED:20230814T193350Z
LAST-MODIFIED:20240122T231529Z
UID:10002331-1719360000-1719705599@umdf.org
SUMMARY:UMDF Mitochondrial Medicine 2024 in Cleveland\, Ohio
DESCRIPTION:Save the DATE to join us June 26-29\, 2024\nTo register and learn more\, visit umdfconference.org for updates\nHilton Downtown Cleveland\nCall for Abstracts will open in December 2023.\n2024 Registration will open in February 1\, 2024.
URL:https://umdf.org/event/umdf-mitochondrial-medicine-2024-cleveland/
LOCATION:Hilton Downtown Cleveland\, 100 Lakeside Ave E\, Cleveland\, OH 44114\, OH\, 44114\, United States
CATEGORIES:Education,Scientific Meeting,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240529T190000
DTEND;TZID=America/New_York:20240529T200000
DTSTAMP:20260430T053839
CREATED:20240122T224406Z
LAST-MODIFIED:20240122T230204Z
UID:10002939-1717009200-1717012800@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Mitochondrial Disease Primer
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on May 29\, 2024\nat 4:00pm Pacific/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nMitochondrial Disease Primer\nSpeaker:\nMelissa Walker\, MD\, PhD\, Massachusetts General Hospital\, Boston\, MA \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on May 29\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-mitoprimer2024/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240430T190000
DTEND;TZID=America/New_York:20240430T200000
DTSTAMP:20260430T053839
CREATED:20240116T142229Z
LAST-MODIFIED:20240116T142244Z
UID:10002875-1714503600-1714507200@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – MELAS 101
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on April 30\, 2024\nat 4:00pm Pacific/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nMELAS 101\nSpeakers:\nMichio Hirano\, MD\, Columbia University\, New York\, NY\nFernando Scaglia\, MD\, Baylor College of Medicine\, Houston\, TX \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on April 30\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-melas-2/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
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