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DTSTART;TZID=America/New_York:20240914T090000
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DTSTAMP:20260501T005845
CREATED:20240909T181131Z
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UID:10003158-1726304400-1726918200@umdf.org
SUMMARY:Energy for Life Walk - National (Virtual)
DESCRIPTION:ENERGY FOR LIFE WALK NATIONAL \nSEPTEMBER 14 – 21\, 2024 \n\nLOCATION\nA Venue of Your Choice! \nSCHEDULE \nA Start of Your Choice! \nCONTACT\nMonika Hancock – 412-225-9066\nAngela Sommer – 412-539-9450
URL:https://umdf.org/event/energy-for-life-walk-national-2/
LOCATION:NC
CATEGORIES:EFL,Family Friendly,Fundraising
ORGANIZER;CN="Angela Sommer":MAILTO:angela.sommer@umdf.org
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DTSTART;VALUE=DATE:20240916
DTEND;VALUE=DATE:20240923
DTSTAMP:20260501T005845
CREATED:20240820T163612Z
LAST-MODIFIED:20240820T163810Z
UID:10003076-1726444800-1727049599@umdf.org
SUMMARY:World Mitochondrial Disease Awareness Week
DESCRIPTION:Energize the Fight – World Mitochondrial Disease Week 2024 \nWe’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease Week\, September 16-22\, 2024! Together\, we can promote understanding and recognition with the hope that increased awareness\, attention\, and funds will move the needle toward effective treatments and cures for the entire mito community. \nTK2d Tuesday – September 10 \nUMDF Virtual Capitol Hill Day – September 17\nLHON Awareness Day – September 19\nFDA Listening Meeting on Genetic Therapy Treatments for Rare Diseases – September 20\, 11am-4:30pm ET\nGlobal Light Up for Mito – September 21 \nMore info on global events and initiatives: mitochondrialdiseaseweek.org  \n  \n  \nEnergize the Fight – World Mitochondrial Disease Week 2024
URL:https://umdf.org/event/world-mitochondrial-disease-awareness-week-3/
LOCATION:NC
CATEGORIES:Education,Family Friendly,Fundraising,Give Back,Support Meeting
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