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X-WR-CALDESC:Events for UMDF
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260603T200000
DTEND;TZID=America/New_York:20260603T210000
DTSTAMP:20260429T134224
CREATED:20250227T153450Z
LAST-MODIFIED:20250313T133520Z
UID:10003798-1780516800-1780520400@umdf.org
SUMMARY:LHON Live! Monthly Call
DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings  \n 
URL:https://umdf.org/event/lhon-live-monthly-call/2026-06-03/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260604T200000
DTEND;TZID=America/New_York:20260604T210000
DTSTAMP:20260429T134224
CREATED:20260226T163004Z
LAST-MODIFIED:20260226T163004Z
UID:10004443-1780603200-1780606800@umdf.org
SUMMARY:LHON - Navigating Employment/Careers
DESCRIPTION:This Zoom event is for anyone interested in discussing Navigating Employment/Careers with LHON. Bring your questions and comments to share with the group. \nThere is also a Facebook group: Navigating Employment/Careers with LHON\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\n\nMeeting ID: 953 7131 3871\n\nOr join by phone with one tap mobile:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#\n\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871#\nFor callers in other countries\, find your local number here:\nhttps://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871
URL:https://umdf.org/event/lhon-navigating-employment-careers/2026-06-04/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260609T200000
DTEND;TZID=America/New_York:20260609T213000
DTSTAMP:20260429T134224
CREATED:20250129T211459Z
LAST-MODIFIED:20260309T143327Z
UID:10004451-1781035200-1781040600@umdf.org
SUMMARY:LHON Sisterhood
DESCRIPTION:LHON Sisterhood \nAre you a woman who carries an LHON mutation? Whether you’re affected by LHON symptoms or not\, you’re invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation. \nIf you are a female who carries an LHON mutation\, we invite you to join this call and our Facebook group. If you are not\, but you know a woman impacted by LHON in this way who would benefit from this call and Facebook group\, and from being part of the LHON Sisterhood community\, please invite them to join us! \nReach out to Scarlet Keolanui Dreifuss at scarletkeolanui@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-sisterhood-3/2026-06-09/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260617T200000
DTEND;TZID=America/New_York:20260617T213000
DTSTAMP:20260429T134224
CREATED:20250206T185144Z
LAST-MODIFIED:20260309T144427Z
UID:10004396-1781726400-1781731800@umdf.org
SUMMARY:Dads of LHON - Affected "Kids of All Ages"
DESCRIPTION:The bimonthly call for Dads of LHON-Affected “Kids of All Ages” takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you’re a dad of someone affected by LHON\, consider joining the call and sharing your experiences with others in a similar situation.  Hosts Tony Wright and Jim Tolve host this open-discussion format call. Reach out to Jim Tolve at jetragnar@gmail.com or Tony Wright at AWright201@gmail.com with any questions. \nThere’s also a Facebook group for Dads of LHON-Affected”Kids of All Ages” located at this link: https://www.facebook.com/groups/175672076390420 \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/dads-of-lhon-affected-kids-of-all-ages/2026-06-17/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260618T190000
DTEND;TZID=America/New_York:20260618T200000
DTSTAMP:20260429T134224
CREATED:20210727T145309Z
LAST-MODIFIED:20210727T145309Z
UID:10001161-1781809200-1781812800@umdf.org
SUMMARY:LHON - New York\, New Jersey\, Pennsylvania Connect
DESCRIPTION:Please Join Us! \nThis call for those living in New York\, New Jersey\, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. \nThe following Facebook Groups are also available: \n\nNew York Group – Click here\nNew Jersey Group – Click here\nPennsylvania Group – Click here\n\nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US
URL:https://umdf.org/event/lhon-new-york-new-jersey-pennsylvania-connect-2024-12-19/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260622T200000
DTEND;TZID=America/New_York:20260622T213000
DTSTAMP:20260429T134224
CREATED:20260219T125302Z
LAST-MODIFIED:20260309T145651Z
UID:10004365-1782158400-1782163800@umdf.org
SUMMARY:LHON Assistive Technology
DESCRIPTION:This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON\, and she is an Assistive Technology instructor. \nThere is also a Facebook group: LHON Assistive Technology\n\nTo join the Zoom event\, use the link below:\nhttps://umdf.zoom.us/j/95371313871\n\nMeeting ID: 953 7131 3871\n\nOr join by phone with one tap mobile:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#\n\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871#\nFor callers in other countries\, find your local number here:\nhttps://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nPlease direct message Sara Nappi with any questions\, concerns or topic suggestions. \n\n\n\n\n\nMore details\nMore details\nCopy to my calendar\nCopy to my calendar
URL:https://umdf.org/event/lhon-assistive-technology-2/2026-06-22/
CATEGORIES:LHON,Support Meeting
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