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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261007T200000
DTEND;TZID=America/New_York:20261007T210000
DTSTAMP:20260429T181143
CREATED:20250227T153450Z
LAST-MODIFIED:20250313T133520Z
UID:10003802-1791403200-1791406800@umdf.org
SUMMARY:LHON Live! Monthly Call
DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings  \n 
URL:https://umdf.org/event/lhon-live-monthly-call/2026-10-07/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261014T200000
DTEND;TZID=America/New_York:20261014T210000
DTSTAMP:20260429T181143
CREATED:20260226T142149Z
LAST-MODIFIED:20260226T143638Z
UID:10004420-1792008000-1792011600@umdf.org
SUMMARY:LHON - Teens
DESCRIPTION:This call is ONLY for teens (under 18) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. \nPlease contact Molly Garrone at mollyeknox@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-teens-2/2026-10-14/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261020T200000
DTEND;TZID=America/New_York:20261020T210000
DTSTAMP:20260429T181143
CREATED:20260226T150155Z
LAST-MODIFIED:20260226T150157Z
UID:10004430-1792526400-1792530000@umdf.org
SUMMARY:LHON Onset at Age 60+
DESCRIPTION:Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so\, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. This event is led by Howard Sumner and Jessica Loomer.\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-onset-at-age-60-2/2026-10-20/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261021T200000
DTEND;TZID=America/New_York:20261021T213000
DTSTAMP:20260429T181143
CREATED:20250206T185144Z
LAST-MODIFIED:20260309T144427Z
UID:10004458-1792612800-1792618200@umdf.org
SUMMARY:Dads of LHON - Affected "Kids of All Ages"
DESCRIPTION:The bimonthly call for Dads of LHON-Affected “Kids of All Ages” takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you’re a dad of someone affected by LHON\, consider joining the call and sharing your experiences with others in a similar situation.  Hosts Tony Wright and Jim Tolve host this open-discussion format call. Reach out to Jim Tolve at jetragnar@gmail.com or Tony Wright at AWright201@gmail.com with any questions. \nThere’s also a Facebook group for Dads of LHON-Affected”Kids of All Ages” located at this link: https://www.facebook.com/groups/175672076390420 \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/dads-of-lhon-affected-kids-of-all-ages/2026-10-21/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261026T200000
DTEND;TZID=America/New_York:20261026T213000
DTSTAMP:20260429T181143
CREATED:20260219T125302Z
LAST-MODIFIED:20260309T145651Z
UID:10004367-1793044800-1793050200@umdf.org
SUMMARY:LHON Assistive Technology
DESCRIPTION:This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON\, and she is an Assistive Technology instructor. \nThere is also a Facebook group: LHON Assistive Technology\n\nTo join the Zoom event\, use the link below:\nhttps://umdf.zoom.us/j/95371313871\n\nMeeting ID: 953 7131 3871\n\nOr join by phone with one tap mobile:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#\n\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871#\nFor callers in other countries\, find your local number here:\nhttps://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nPlease direct message Sara Nappi with any questions\, concerns or topic suggestions. \n\n\n\n\n\nMore details\nMore details\nCopy to my calendar\nCopy to my calendar
URL:https://umdf.org/event/lhon-assistive-technology-2/2026-10-26/
CATEGORIES:LHON,Support Meeting
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