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X-WR-CALDESC:Events for UMDF
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DTSTART;TZID=America/New_York:20261104T200000
DTEND;TZID=America/New_York:20261104T210000
DTSTAMP:20260429T191753
CREATED:20250227T153450Z
LAST-MODIFIED:20250313T133520Z
UID:10003803-1793822400-1793826000@umdf.org
SUMMARY:LHON Live! Monthly Call
DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings  \n 
URL:https://umdf.org/event/lhon-live-monthly-call/2026-11-04/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261109T180000
DTEND;TZID=America/New_York:20261109T193000
DTSTAMP:20260429T191753
CREATED:20250206T191443Z
LAST-MODIFIED:20260309T143751Z
UID:10004454-1794247200-1794252600@umdf.org
SUMMARY:LHON South Central Connect
DESCRIPTION:This call is for those living in the South Central region with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThe South Central region includes Texas\, Oklahoma\, Arkansas\, and Louisiana. \nThere’s also a Facebook group: LHON-Texas\, Oklahoma\, Arkansas\, & Louisiana \nReach out to Donna Basse at sbasse5472@aol.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\n\nMeeting ID: 953 7131 3871\n\nOr join by phone with one tap mobile:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871# \n  \n\n\n\n\n\nMore details\nMore details\nCopy to my calendar\nCopy to my calendar
URL:https://umdf.org/event/lhon-south-central-connect/2026-11-09/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261111T200000
DTEND;TZID=America/New_York:20261111T210000
DTSTAMP:20260429T191753
CREATED:20250313T202854Z
LAST-MODIFIED:20260226T150619Z
UID:10004440-1794427200-1794430800@umdf.org
SUMMARY:Parenting with LHON
DESCRIPTION:This Zoom event is for anyone interested in discussing parenting while affected with LHON vision loss. Bring your questions and comments to share with the group.\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\n\nMeeting ID: 953 7131 3871\n\nOr join by phone with one tap mobile:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#\n\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871#\nFor callers in other countries\, find your local number here:\nhttps://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871
URL:https://umdf.org/event/parenting-with-lhon/2026-11-11/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261117T200000
DTEND;TZID=America/New_York:20261117T210000
DTSTAMP:20260429T191753
CREATED:20260226T145735Z
LAST-MODIFIED:20260226T145852Z
UID:10004428-1794945600-1794949200@umdf.org
SUMMARY:LHON - Northeast Connect
DESCRIPTION:This call is for those living in the Northeast with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThe Northeast includes all the New England states (Maine\, Vermont\, New Hampshire\, Massachusetts\, Connecticut\, & Rhode Island)\, New York\, New Jersey\, and Pennsylvania. \nThere are various Facebook groups for these locations: \n  \n\nNew England Group\nNew York Group\nNew Jersey Group\nPennsylvania Group\n\n  \nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-northeast-connect/2026-11-17/
CATEGORIES:LHON
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261118T200000
DTEND;TZID=America/New_York:20261118T213000
DTSTAMP:20260429T191753
CREATED:20250206T190510Z
LAST-MODIFIED:20260309T144907Z
UID:10004459-1795032000-1795037400@umdf.org
SUMMARY:Moms of LHON - Affected "Kids of All Ages"
DESCRIPTION:If you’re a mom of someone affected by LHON\, consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. \nThere’s also a Facebook group for Moms of LHON-Affected “Kids of All Ages” located at this link: https://www.facebook.com/groups/1862093300546686 \nJoin Details: \nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/moms-of-lhon-affected-kids-of-all-ages/2026-11-18/
CATEGORIES:LHON,Support Meeting
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