Event Series LHON Live! Monthly Call

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy […]

LHON Southwest + Pacific Northwest Connect

Wednesday, December 11, 8:00 – 9:00pm ET (5:00 – 6:00pm PT) The LHON Southwest & LHON Pacific Northwest groups are merging! This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Pacific Northwest LHON communities! Consider joining the call to share your experiences with […]

LHON – Midwest Connect

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.  This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]

Event Series LHON – Midwest Connect

LHON – Midwest Connect

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at [email protected] with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or if […]

LHON – New York, New Jersey, Pennsylvania Connect

Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]

LHON NY, NJ, PA + New England Connect

This call is for those living in New York, New Jersey, or Pennsylvania or New England with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.  There's also a Facebook group for those in New York located at this link: https://www.facebook.com/groups/461059260910891 And in New Jersey located at this […]

Event Series LHON Live! Monthly Call

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy […]

LHON MS Zoom Event

LHON MS Zoom Event This Zoom event is for those in the LHON community who also live with MS. Our goal is to develop connections among those who have both LHON and MS. This call takes place quarterly on select dates. There is also a Facebook group: LHON-MS group Reach out to Lissa Poincenot at [email protected] with any questions. […]

Event Series LHON Live! Monthly Call

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy […]

LHON Sisterhood

LHON Sisterhood Saturday, February 8, 12:00pm – 1:30 pm ET Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss […]