LHON
LHON – Young Adults
This call is ONLY for young adults (18 and over) who are affected with LHON vision loss.
Navigating Employment/Careers with LHON
This Zoom event is for anyone interested in discussing Navigating Employment/Careers with LHON. Bring your questions and comments to share with the group. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or join by phone with one tap mobile: +16699006833,,95371313871# +16468769923,,95371313871# Canada: +16475580588,,95371313871# Australia: +61280152088,,95371313871# […]
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or if […]
LHON New England Connect
This is a call for those living in New England with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation. Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. There's also a Facebook group for those in New England located at this link: https://www.facebook.com/groups/443485919190265 Join Details: One option is […]
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you're a dad of someone affected by LHON, consider joining the call and sharing […]
LHON Assistive Technology
This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive Technology instructor. These events will take place alternating months, on the fourth Monday, at 8 pm Eastern / 5 pm Pacific. To join the Zoom event, […]
Spouses of LHON-Affected Individuals
Are you the spouse (or similar) of someone affected by LHON? Would you like to network with others in a similar situation? Consider joining our LHON Spouses meet-up Zoom event. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. Join Details: One option is to use Internet Audio […]
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts Jessica Loomer and Andy […]
LHON – Texas/Oklahoma/ Arkansas/Louisiana Connect
This call is for those living in Texas, Oklahoma, Arkansas and Louisiana, with an interest in LHON. Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation.
LHON Southeast Connect
This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
LHON – New York, New Jersey, Pennsylvania Connect
This call is for those living in New York, New Jersey, or Pennsylvania with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Hosts Jim and Mary Tolve facilitate this call. Reach out to Jim Tolve at jetragnar@gmail.com with any questions. There's also a Facebook group for those in New York […]