LHON On-set Over 60

Reach out to Lissa Poincenot at [email protected] with any questions.   Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 […]

LHON – New England Connect

This is a call for those living in New England with an interest in LHON. This call takes place quarterly on the second Tuesday of the month, at 7:30pm Eastern. […]

LHON 3460 Zoom Meeting

This Zoom Event is for those with an interest in the LHON 3460 mutation. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 […]

Event Series LHON Sisterhood

LHON Sisterhood

Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation.

LHON & Charles Bonnet Syndrome Connect

Many people who are affected with LHON vision also experience Charles Bonnet Syndrome (CBS), the experience of phantom images or hallucinations which co-exist with one's regular visual experience. They can […]