LHON
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you're a dad of someone affected by LHON, consider joining the call and sharing […]
LHON Assistive Technology
This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive Technology instructor. These events will take place alternating months, on the fourth Monday, at 8 pm Eastern / 5 pm Pacific. To join the Zoom event, […]
Navigating Employment/Careers with LHON
This Zoom event is for anyone interested in discussing Navigating Employment/Careers with LHON. The event is led by Zak Turner. Bring your questions and comments to share with the group.
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts Jessica Loomer and Andy […]
LHON – Texas/Oklahoma/ Arkansas/Louisiana Connect
This call is for those living in Texas, Oklahoma, Arkansas and Louisiana, with an interest in LHON. Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation.
LHON-Affected Women
If you're a woman with LHON vision (affected), consider joining the call and sharing your experiences with others in a similar situation. Reach out to Jessica Loomer jessica.loomer@gmail.com with any questions. There's also a Facebook group for LHON-Affected Women located at this link: https://www.facebook.com/groups/404650029721330 Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 […]
LHON Southeast + DC-Area Connect
This call is for those living in Georgia and Florida or in the DC Area, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. There's also a Facebook group for those in Georgia located at this link: https://www.facebook.com/groups/2157760391116970 And for those in Florida located at this […]
LHON Plus Connect
This Zoom event is for anyone interested in discussing LHON Plus.
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
LHON – New York, New Jersey, Pennsylvania Connect
This call is for those living in New York, New Jersey, or Pennsylvania with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Hosts Jim and Mary Tolve facilitate this call. Reach out to Jim Tolve at jetragnar@gmail.com with any questions. There's also a Facebook group for those in New York […]
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts Jessica Loomer and Andy […]
LHON New England Connect
This is a call for those living in New England with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation. Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. There's also a Facebook group for those in New England located at this link: https://www.facebook.com/groups/443485919190265 Join Details: One option is […]