UMDF

LHON Midwest Connect
2025-04-21 20:00 - 21:00 (America/New_York)
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

LHON Assistive Technology
2025-04-22 20:00 - 21:30, 2025-06-24 20:00 - 21:30, 2025-08-26 20:00 - 21:30, 2025-10-28 20:00 - 21:30, 2025-12-16 20:00 - 21:30
This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive Technology instructor.
There is also a Facebook group: LHON Assistive Technology

To join the Zoom event, use the link below:
https://umdf.zoom.us/j/95371313871

Meeting ID: 953 7131 3871

Or join by phone with one tap mobile:
+16699006833,,95371313871#
+16468769923,,95371313871#

Canada: +16475580588,,95371313871#
Australia: +61280152088,,95371313871#
UK: +442034815240,,95371313871#
For callers in other countries, find your local number here:
https://zoom.us/u/aYbvpoNU9
Meeting ID: 953 7131 3871
Please direct message Sara Nappi with any questions, concerns or topic suggestions.

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LHON Onset at Age 60+
2025-04-23 20:00 - 21:00, 2025-10-22 20:00 - 21:00
Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. This event is led by Howard Sumner and Jessica Loomer.

Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

LHON Live! Monthly Call
2025-05-07 20:00 - 21:00, 2025-06-04 20:00 - 21:00, 2025-07-02 20:00 - 21:00, 2025-08-06 20:00 - 21:00, 2025-09-03 20:00 - 21:00, 2025-10-01 20:00 - 21:00, 2025-11-05 20:00 - 21:00, 2025-12-03 20:00 - 21:00 and 2 more dates
NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time.
This call is for everyone interested in LHON…those affected, carriers, or sighted supporters…all are welcome. You can speak up and share your thoughts, or just listen to what others have to say…It’s your call! Hosts Jessica Loomer and Andy Marks facilitate this call.
Recordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/
Reach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+13017158592,,95371313871# US
+13126266799,,95371313871# US
Canada: +16475580588,,95371313871#
Australia: +61280152088,,95371313871#
UK: +442034815240,,95371313871#
For callers in other countries, find your local number here: https://zoom.us/u/aYbvpoNU9
Meeting ID: 953 7131 3871
Click Here for Previous LHON Live! Recordings

LHON 3460 Zoom Meeting
2025-05-10 12:00 - 13:30
This Zoom Event is for those with an interest in the LHON 3460 mutation.
There is also a Facebook group for the LHON 3460 mutation: https://www.facebook.com/groups/768643820476272
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#
event
Organizer: LHON Project

LHON - New York, New Jersey, Pennsylvania Connect
2025-06-19 19:00 - 20:00, 2025-09-18 19:00 - 20:00, 2025-12-18 19:00 - 20:00
Please Join Us!
This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation.
The following Facebook Groups are also available:

New York Group – Click here
New Jersey Group – Click here
Pennsylvania Group – Click here

Reach out to Jim Tolve at jetragnar@gmail.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at:
https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+13017158592,,95371313871# US
+13126266799,,95371313871# US

LHON - Teens
2025-07-01 20:00 - 21:00, 2025-11-04 20:00 - 21:00
This call is ONLY for teens (under 18) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation.
Please contact Molly Garrone at mollyeknox@gmail.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

LHON West Connect
2025-08-13 22:00 - 23:30, 2025-12-10 22:00 - 23:30
The LHON Southwest & LHON Pacific Northwest groups have merged!

This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions.
There are also Facebook groups for those in the Southwest & Northwest areas:

Southwest: https://www.facebook.com/groups/1634812156795801
Northwest: https://www.facebook.com/groups/240239936350807

Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

LHON Southeast Connect
2025-08-14 20:00 - 21:00, 2025-12-11 20:00 - 21:00
Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area.
This call is for those living in the DC area, Georgia, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
There are also Facebook groups for these areas:

DC area: https://www.facebook.com/groups/243446586122096
Georgia: https://www.facebook.com/groups/2157760391116970
Florida: https://www.facebook.com/groups/867332836666024

Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

Spouses of LHON - Affected Individuals
2025-08-19 20:00 - 21:30, 2026-02-17 20:00 - 21:30
Are you the spouse (or similar) of someone affected by LHON? Would you like to network with others in a similar situation? Consider joining our event for Spouses of LHON-Affected Individuals Zoom event. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences.
Join Details:
One option is to use Internet Audio to call at no charge at:
https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+13017158592,,95371313871# US
+13126266799,,95371313871# US
Canada: +16475580588,,95371313871#
Australia: +61280152088,,95371313871#
UK: +442034815240,,95371313871#

For callers in other countries, find your local number here:
https://zoom.us/u/aYbvpoNU9
Meeting ID: 953 7131 3871
