LHON Sisterhood
2026-12-08 20:00 - 21:30 (America/New_York)
LHON Sisterhood
Are you a woman who carries an LHON mutation? Whether you’re affected by LHON symptoms or not, you’re invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation.
If you are a female who carries an LHON mutation, we invite you to join this call and our Facebook group. If you are not, but you know a woman impacted by LHON in this way who would benefit from this call and Facebook group, and from being part of the LHON Sisterhood community, please invite them to join us!
Reach out to Scarlet Keolanui Dreifuss at scarletkeolanui@gmail.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

LHON West Connect
2026-12-09 22:00 - 23:30, 2027-04-14 22:00 - 23:30, 2027-08-11 22:00 - 23:30, 2027-12-08 22:00 - 23:30, 2028-04-12 22:00 - 23:30, 2028-08-09 22:00 - 23:30
The LHON Southwest & LHON Pacific Northwest groups have merged!

This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions.
There are also Facebook groups for those in the Southwest & Northwest areas:

Southwest: https://www.facebook.com/groups/1634812156795801
Northwest: https://www.facebook.com/groups/240239936350807

Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

LHON Southeast Connect
2026-12-10 20:00 - 21:00, 2027-04-08 20:00 - 21:00, 2027-08-12 20:00 - 21:00, 2027-12-09 20:00 - 21:00, 2028-04-13 20:00 - 21:00, 2028-08-10 20:00 - 21:00
Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area.
This call is for those living in the DC area, Georgia, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
There are also Facebook groups for these areas:

DC area: https://www.facebook.com/groups/243446586122096
Georgia: https://www.facebook.com/groups/2157760391116970
Florida: https://www.facebook.com/groups/867332836666024

Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

LHON Midwest Connect
2026-12-14 20:00 - 21:00
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

Dads of LHON - Affected "Kids of All Ages"
2026-12-16 20:00 - 21:30
The bimonthly call for Dads of LHON-Affected “Kids of All Ages” takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you’re a dad of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation. Hosts Tony Wright and Jim Tolve host this open-discussion format call. Reach out to Jim Tolve at jetragnar@gmail.com or Tony Wright at AWright201@gmail.com with any questions.
There’s also a Facebook group for Dads of LHON-Affected”Kids of All Ages” located at this link: https://www.facebook.com/groups/175672076390420
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

LHON - New York, New Jersey, Pennsylvania Connect
2026-12-17 19:00 - 20:00, 2027-03-18 19:00 - 20:00, 2027-06-17 19:00 - 20:00, 2027-09-16 19:00 - 20:00, 2027-12-16 19:00 - 20:00
Please Join Us!
This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation.
The following Facebook Groups are also available:

New York Group – Click here
New Jersey Group – Click here
Pennsylvania Group – Click here

Reach out to Jim Tolve at jetragnar@gmail.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at:
https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+13017158592,,95371313871# US
+13126266799,,95371313871# US

LHON Live! Monthly Call
2027-01-06 20:00 - 21:00, 2027-02-03 20:00 - 21:00
NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time.
This call is for everyone interested in LHON…those affected, carriers, or sighted supporters…all are welcome. You can speak up and share your thoughts, or just listen to what others have to say…It’s your call! Hosts Jessica Loomer and Andy Marks facilitate this call.
Recordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/
Reach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+13017158592,,95371313871# US
+13126266799,,95371313871# US
Canada: +16475580588,,95371313871#
Australia: +61280152088,,95371313871#
UK: +442034815240,,95371313871#
For callers in other countries, find your local number here: https://zoom.us/u/aYbvpoNU9
Meeting ID: 953 7131 3871
Click Here for Previous LHON Live! Recordings

Spouses of LHON - Affected Individuals
2027-02-16 20:00 - 21:30, 2027-08-17 20:00 - 21:30, 2028-02-15 20:00 - 21:30, 2028-08-15 20:00 - 21:30
Are you the spouse (or similar) of someone affected by LHON? Would you like to network with others in a similar situation? Consider joining our event for Spouses of LHON-Affected Individuals Zoom event. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences.
Join Details:
One option is to use Internet Audio to call at no charge at:
https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+13017158592,,95371313871# US
+13126266799,,95371313871# US
Canada: +16475580588,,95371313871#
Australia: +61280152088,,95371313871#
UK: +442034815240,,95371313871#

For callers in other countries, find your local number here:
https://zoom.us/u/aYbvpoNU9
Meeting ID: 953 7131 3871

LHON Onset at Age 60+
2027-04-20 20:00 - 21:00, 2027-10-19 20:00 - 21:00, 2028-04-18 20:00 - 21:00, 2028-10-17 20:00 - 21:00
Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. This event is led by Howard Sumner and Jessica Loomer.

Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#
