LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

LHON Assistive Technology

This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive […]

LHON – Texas/Oklahoma/ Arkansas/Louisiana Connect

NOTE: Since the meeting is intended for those living in Texas/Oklahoma/Arkansas/Louisiana, this virtual meeting is set in Central Time. This call for those living in Texas, Oklahoma, Arkansas, and Louisiana […]

LHON – Midwest Connect

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.  This call […]

LHON – Southwest Connect

LHON - Southwest Connect This call for those living in the Southwest with an interest in LHON takes place quarterly on the third Tuesday of the month at 8:00pm Pacific. […]

Dads of LHON-Affected “Kids of All Ages”

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The monthly call for Dads of LHON-Affected "Kids of All Ages" takes […]