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DTSTART;TZID=America/Los_Angeles:20270519T120000
DTEND;TZID=America/Los_Angeles:20270519T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004786-1810728000-1810731600@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2027-05-19/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20270607T100000
DTEND;TZID=America/Los_Angeles:20270607T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10003209-1812362400-1812366000@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2027-06-07/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20270616T120000
DTEND;TZID=America/Los_Angeles:20270616T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004787-1813147200-1813150800@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2027-06-16/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20270705T100000
DTEND;TZID=America/Los_Angeles:20270705T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10003210-1814781600-1814785200@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2027-07-05/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20270721T120000
DTEND;TZID=America/Los_Angeles:20270721T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004788-1816171200-1816174800@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2027-07-21/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20270802T100000
DTEND;TZID=America/Los_Angeles:20270802T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10003211-1817200800-1817204400@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2027-08-02/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270811T220000
DTEND;TZID=America/New_York:20270811T233000
DTSTAMP:20250313T140407Z
CREATED:20241001T160506Z
LAST-MODIFIED:20250313T140407Z
UID:10003979-1818021600-1818027000@umdf.org
SUMMARY:LHON West Connect
DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-west-connect/2027-08-11/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20270818T120000
DTEND;TZID=America/Los_Angeles:20270818T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004789-1818590400-1818594000@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2027-08-18/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20270906T100000
DTEND;TZID=America/Los_Angeles:20270906T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10003212-1820224800-1820228400@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2027-09-06/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20270915T120000
DTEND;TZID=America/Los_Angeles:20270915T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004790-1821009600-1821013200@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2027-09-15/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20271004T100000
DTEND;TZID=America/Los_Angeles:20271004T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10003213-1822644000-1822647600@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2027-10-04/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20271020T120000
DTEND;TZID=America/Los_Angeles:20271020T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004791-1824033600-1824037200@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2027-10-20/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20271101T100000
DTEND;TZID=America/Los_Angeles:20271101T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10003214-1825063200-1825066800@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2027-11-01/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20271117T120000
DTEND;TZID=America/Los_Angeles:20271117T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004792-1826452800-1826456400@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2027-11-17/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20271206T100000
DTEND;TZID=America/Los_Angeles:20271206T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10003215-1828087200-1828090800@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2027-12-06/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20271208T220000
DTEND;TZID=America/New_York:20271208T233000
DTSTAMP:20250313T140407Z
CREATED:20241001T160506Z
LAST-MODIFIED:20250313T140407Z
UID:10003980-1828303200-1828308600@umdf.org
SUMMARY:LHON West Connect
DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-west-connect/2027-12-08/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20271215T120000
DTEND;TZID=America/Los_Angeles:20271215T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004793-1828872000-1828875600@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2027-12-15/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20280103T100000
DTEND;TZID=America/Los_Angeles:20280103T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10003216-1830506400-1830510000@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2028-01-03/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20280119T120000
DTEND;TZID=America/Los_Angeles:20280119T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004794-1831896000-1831899600@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2028-01-19/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20280207T100000
DTEND;TZID=America/Los_Angeles:20280207T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10003217-1833530400-1833534000@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2028-02-07/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20280216T120000
DTEND;TZID=America/Los_Angeles:20280216T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004795-1834315200-1834318800@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2028-02-16/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20280306T100000
DTEND;TZID=America/Los_Angeles:20280306T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10003218-1835949600-1835953200@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2028-03-06/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20280315T120000
DTEND;TZID=America/Los_Angeles:20280315T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004796-1836734400-1836738000@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2028-03-15/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20280403T100000
DTEND;TZID=America/Los_Angeles:20280403T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10003219-1838368800-1838372400@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2028-04-03/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20280412T220000
DTEND;TZID=America/New_York:20280412T233000
DTSTAMP:20250313T140407Z
CREATED:20241001T160506Z
LAST-MODIFIED:20250313T140407Z
UID:10003981-1839189600-1839195000@umdf.org
SUMMARY:LHON West Connect
DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-west-connect/2028-04-12/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20280419T120000
DTEND;TZID=America/Los_Angeles:20280419T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004797-1839758400-1839762000@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2028-04-19/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20280501T100000
DTEND;TZID=America/Los_Angeles:20280501T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10003220-1840788000-1840791600@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2028-05-01/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20280517T120000
DTEND;TZID=America/Los_Angeles:20280517T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004798-1842177600-1842181200@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2028-05-17/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20280605T100000
DTEND;TZID=America/Los_Angeles:20280605T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10003221-1843812000-1843815600@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2028-06-05/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20280621T120000
DTEND;TZID=America/Los_Angeles:20280621T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004799-1845201600-1845205200@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2028-06-21/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
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END:VCALENDAR