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DTSTART;TZID=America/Los_Angeles:20300401T100000
DTEND;TZID=America/Los_Angeles:20300401T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004062-1901268000-1901271600@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2030-04-01/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20300417T120000
DTEND;TZID=America/Los_Angeles:20300417T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004821-1902657600-1902661200@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2030-04-17/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20300506T100000
DTEND;TZID=America/Los_Angeles:20300506T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004063-1904292000-1904295600@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2030-05-06/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20300515T120000
DTEND;TZID=America/Los_Angeles:20300515T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004822-1905076800-1905080400@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2030-05-15/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20300603T100000
DTEND;TZID=America/Los_Angeles:20300603T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004064-1906711200-1906714800@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2030-06-03/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20300619T120000
DTEND;TZID=America/Los_Angeles:20300619T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004823-1908100800-1908104400@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2030-06-19/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20300701T100000
DTEND;TZID=America/Los_Angeles:20300701T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004065-1909130400-1909134000@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2030-07-01/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20300717T120000
DTEND;TZID=America/Los_Angeles:20300717T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004824-1910520000-1910523600@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2030-07-17/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20300805T100000
DTEND;TZID=America/Los_Angeles:20300805T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004066-1912154400-1912158000@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2030-08-05/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20300821T120000
DTEND;TZID=America/Los_Angeles:20300821T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004825-1913544000-1913547600@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2030-08-21/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20300902T100000
DTEND;TZID=America/Los_Angeles:20300902T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004629-1914573600-1914577200@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2030-09-02/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20300918T120000
DTEND;TZID=America/Los_Angeles:20300918T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004826-1915963200-1915966800@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2030-09-18/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20301007T100000
DTEND;TZID=America/Los_Angeles:20301007T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004630-1917597600-1917601200@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2030-10-07/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20301016T120000
DTEND;TZID=America/Los_Angeles:20301016T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004827-1918382400-1918386000@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2030-10-16/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20301104T100000
DTEND;TZID=America/Los_Angeles:20301104T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004631-1920016800-1920020400@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2030-11-04/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20301120T120000
DTEND;TZID=America/Los_Angeles:20301120T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004828-1921406400-1921410000@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2030-11-20/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20301202T100000
DTEND;TZID=America/Los_Angeles:20301202T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004632-1922436000-1922439600@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2030-12-02/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20301218T120000
DTEND;TZID=America/Los_Angeles:20301218T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004829-1923825600-1923829200@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2030-12-18/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310106T100000
DTEND;TZID=America/Los_Angeles:20310106T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004633-1925460000-1925463600@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2031-01-06/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310115T120000
DTEND;TZID=America/Los_Angeles:20310115T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004830-1926244800-1926248400@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2031-01-15/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310203T100000
DTEND;TZID=America/Los_Angeles:20310203T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004634-1927879200-1927882800@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2031-02-03/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310219T120000
DTEND;TZID=America/Los_Angeles:20310219T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004831-1929268800-1929272400@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2031-02-19/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310303T100000
DTEND;TZID=America/Los_Angeles:20310303T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004635-1930298400-1930302000@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2031-03-03/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310319T120000
DTEND;TZID=America/Los_Angeles:20310319T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004832-1931688000-1931691600@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2031-03-19/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310407T100000
DTEND;TZID=America/Los_Angeles:20310407T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004636-1933322400-1933326000@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2031-04-07/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310416T120000
DTEND;TZID=America/Los_Angeles:20310416T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004833-1934107200-1934110800@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2031-04-16/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310505T100000
DTEND;TZID=America/Los_Angeles:20310505T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004637-1935741600-1935745200@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2031-05-05/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310521T120000
DTEND;TZID=America/Los_Angeles:20310521T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004834-1937131200-1937134800@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2031-05-21/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310602T100000
DTEND;TZID=America/Los_Angeles:20310602T110000
DTSTAMP:20260826T133654Z
CREATED:20240708T192355Z
LAST-MODIFIED:20260826T133654Z
UID:10004638-1938160800-1938164400@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2031-06-02/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310618T120000
DTEND;TZID=America/Los_Angeles:20310618T130000
DTSTAMP:20260928T190837Z
CREATED:20260928T190837Z
LAST-MODIFIED:20260928T190837Z
UID:10004835-1939550400-1939554000@umdf.org
SUMMARY:Rare Disease Drug Access Virtual Support Group Meeting
DESCRIPTION:Rare Disease Drug Access Support Group\nWednesday\, October 21\, 2026 | 12:00 p.m. ET (11:00 a.m. CT\, 10:00 a.m. MT\, 9:00 a.m. PT)\nVirtual | Free \n[REGISTER NOW] \nGetting a treatment prescribed is one step. Getting it covered\, filled\, and delivered can be a whole separate process. With new therapies becoming available for people living with mitochondrial disease\, more families are dealing with prior authorizations\, denials\, appeals\, and specialty pharmacies for the first time. \nYou don’t have to figure it out alone. Join UMDF for a virtual support group for patients\, parents\, and caregivers who are working to get access to medications and treatments for mitochondrial disease. \nTogether we’ll talk about:\n• Prior authorizations and what to do when a claim is denied\n• Appeals\, including what information and letters from your care team can help\n• Expanded Access Programs\, copay assistance and patient assistance programs\n• Working with specialty pharmacies and manufacturer support programs\n• Keeping records organized and staying persistent without burning out \nThe group is led by Margaret\, Bethany and the UMDF Support Ambassadors and is a space to ask questions\, share what has worked for you\, and learn from others who understand. \nWho should join: Adults living with mitochondrial disease\, parents\, and caregivers. You’re welcome whether you’re just starting the process or have been at it for a while. \nAfter you register\, you’ll get an email with the link to join. Can’t make it? Our Patient Concierge team can help with insurance questions any time: (888) 900-6486 or support@umdf.org. You can also visit umdf.org/insurance for resources. \nThis group offers peer support and general information. It is not medical\, legal\, or insurance advice. Please talk with your care team and insurance provider about your specific situation. \nThank you for being part of the mito community. We look forward to seeing you on October 21. \nWith gratitude\,\nThe UMDF Support Team \nUnited Mitochondrial Disease Foundation | umdf.org \n 
URL:https://umdf.org/event/rdda/2031-06-18/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
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