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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20261102T100000
DTEND;TZID=America/Los_Angeles:20261102T110000
DTSTAMP:20260521T192934
CREATED:20240708T192355Z
LAST-MODIFIED:20250828T233020Z
UID:10003202-1793613600-1793617200@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2026-11-02/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261104T200000
DTEND;TZID=America/New_York:20261104T210000
DTSTAMP:20260521T192934
CREATED:20250227T153450Z
LAST-MODIFIED:20250313T133520Z
UID:10003803-1793822400-1793826000@umdf.org
SUMMARY:LHON Live! Monthly Call
DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings  \n 
URL:https://umdf.org/event/lhon-live-monthly-call/2026-11-04/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261105T200000
DTEND;TZID=America/New_York:20261105T210000
DTSTAMP:20260521T192934
CREATED:20231019T142537Z
LAST-MODIFIED:20251209T192747Z
UID:10002441-1793908800-1793912400@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2026-11-05/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261106T200000
DTEND;TZID=America/New_York:20261106T210000
DTSTAMP:20260521T192934
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002183-1793995200-1793998800@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-11-06/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261109T180000
DTEND;TZID=America/New_York:20261109T193000
DTSTAMP:20260521T192934
CREATED:20250206T191443Z
LAST-MODIFIED:20260309T143751Z
UID:10004454-1794247200-1794252600@umdf.org
SUMMARY:LHON South Central Connect
DESCRIPTION:This call is for those living in the South Central region with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThe South Central region includes Texas\, Oklahoma\, Arkansas\, and Louisiana. \nThere’s also a Facebook group: LHON-Texas\, Oklahoma\, Arkansas\, & Louisiana \nReach out to Donna Basse at sbasse5472@aol.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\n\nMeeting ID: 953 7131 3871\n\nOr join by phone with one tap mobile:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871# \n  \n\n\n\n\n\nMore details\nMore details\nCopy to my calendar\nCopy to my calendar
URL:https://umdf.org/event/lhon-south-central-connect/2026-11-09/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261111T200000
DTEND;TZID=America/New_York:20261111T210000
DTSTAMP:20260521T192934
CREATED:20250313T202854Z
LAST-MODIFIED:20260226T150619Z
UID:10004440-1794427200-1794430800@umdf.org
SUMMARY:Parenting with LHON
DESCRIPTION:This Zoom event is for anyone interested in discussing parenting while affected with LHON vision loss. Bring your questions and comments to share with the group.\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\n\nMeeting ID: 953 7131 3871\n\nOr join by phone with one tap mobile:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#\n\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871#\nFor callers in other countries\, find your local number here:\nhttps://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871
URL:https://umdf.org/event/parenting-with-lhon/2026-11-11/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261113T200000
DTEND;TZID=America/New_York:20261113T210000
DTSTAMP:20260521T192934
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002184-1794600000-1794603600@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-11-13/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261116T200000
DTEND;TZID=America/New_York:20261116T210000
DTSTAMP:20260521T192934
CREATED:20240117T130219Z
LAST-MODIFIED:20260209T142232Z
UID:10003869-1794859200-1794862800@umdf.org
SUMMARY:Parent and Caregiver Virtual Support Meeting
DESCRIPTION:Parent and Caregiver Virtual Support Meeting \nHello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe THIRD Monday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@umdf.org \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund
URL:https://umdf.org/event/parent-and-caregiver-virtual-support-meeting/2026-11-16/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261118T200000
DTEND;TZID=America/New_York:20261118T213000
DTSTAMP:20260521T192934
CREATED:20250206T190510Z
LAST-MODIFIED:20260309T144907Z
UID:10004459-1795032000-1795037400@umdf.org
SUMMARY:Moms of LHON - Affected "Kids of All Ages"
DESCRIPTION:If you’re a mom of someone affected by LHON\, consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. \nThere’s also a Facebook group for Moms of LHON-Affected “Kids of All Ages” located at this link: https://www.facebook.com/groups/1862093300546686 \nJoin Details: \nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/moms-of-lhon-affected-kids-of-all-ages/2026-11-18/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261120T200000
DTEND;TZID=America/New_York:20261120T210000
DTSTAMP:20260521T192934
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002185-1795204800-1795208400@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-11-20/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261127T200000
DTEND;TZID=America/New_York:20261127T210000
DTSTAMP:20260521T192934
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002186-1795809600-1795813200@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-11-27/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
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