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DTSTART;VALUE=DATE:20240916
DTEND;VALUE=DATE:20240923
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UID:10003076-1726444800-1727049599@umdf.org
SUMMARY:World Mitochondrial Disease Awareness Week
DESCRIPTION:Energize the Fight – World Mitochondrial Disease Week 2024 \nWe’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease Week\, September 16-22\, 2024! Together\, we can promote understanding and recognition with the hope that increased awareness\, attention\, and funds will move the needle toward effective treatments and cures for the entire mito community. \nTK2d Tuesday – September 10 \nUMDF Virtual Capitol Hill Day – September 17\nLHON Awareness Day – September 19\nFDA Listening Meeting on Genetic Therapy Treatments for Rare Diseases – September 20\, 11am-4:30pm ET\nGlobal Light Up for Mito – September 21 \nMore info on global events and initiatives: mitochondrialdiseaseweek.org  \n  \n  \nEnergize the Fight – World Mitochondrial Disease Week 2024
URL:https://umdf.org/event/world-mitochondrial-disease-awareness-week-3/
CATEGORIES:Education,Family Friendly,Fundraising,Give Back,Support Meeting
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DTSTART;TZID=America/New_York:20240920T200000
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UID:10002072-1726862400-1726866000@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-09-20/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
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