Western New York Support Meeting

"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person.  Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]

Event Series LHON – Midwest Connect

LHON – Midwest Connect

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or if […]

Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

LHON New England Connect

This is a call for those living in New England with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation. Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. There's also a Facebook group for those in New England located at this link: https://www.facebook.com/groups/443485919190265 Join Details: One option is […]

Event Series LHON Assistive Technology

LHON Assistive Technology

This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive Technology instructor. These events will take place alternating months, on the fourth Monday, at 8 pm Eastern / 5 pm Pacific. To join the Zoom event, […]

Spouses of LHON-Affected Individuals

Are you the spouse (or similar) of someone affected by LHON? Would you like to network with others in a similar situation? Consider joining our LHON Spouses meet-up Zoom event. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. Join Details: One option is to use Internet Audio […]

Event Series LHON Live! Monthly Call

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy […]

Event Series Adult Virtual Support Meeting

Adult Virtual Support Meeting

Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]