Support Meeting
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]
LHON – Teens
This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.
LHON Southeast Connect
This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
LHON – Texas/Oklahoma/ Arkansas/Louisiana Connect
This call is for those living in Texas, Oklahoma, Arkansas and Louisiana, with an interest in LHON. Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation.
LHON – New England Connect
This is a call for those living in New England with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation.
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York We have a speaker this month! Physical Therapist, Matt Owcarz, PT will join us and will discuss the role of physical therapy […]
LHON – New York, New Jersey, Pennsylvania Connect
This call is for those living in New York, New Jersey, or Pennsylvania with an interest in LHON. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call […]
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place […]