Events Search and Views Navigation

Event Views Navigation

Today

Event Series LHON South Central Connect

LHON South Central Connect

This call is for those living in the South Central region with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. The South Central region includes Texas, Oklahoma, Arkansas, and Louisiana. There's also a Facebook group: LHON-Texas, Oklahoma, Arkansas, & Louisiana Reach out to Donna Basse at [email protected] with any questions. Join […]

Event Series LHON – Young Adults

LHON – Young Adults

This call is ONLY for young adults (18 and over) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. Please contact Molly Garrone at [email protected] with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 […]

Frontiers in Mitochondrial Medicine

Frontiers in Mitochondrial Medicine ​​​​​March 12, 2025 -- Icahn School of Medicine at Mount Sinai Click Here for Agenda and to Register The Department of Genetics and Genomic Sciences at the Icahn School of Medicine at Mount Sinai invites mitochondrial disease families to join them on March 12 - in-person or remotely -- for Frontiers in Mitochondrial […]

Event Series Support Group for All

Support Group for All

When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email containing information about joining the meeting.

Event Series Northeast PA Virtual Greet Support Meeting

Northeast PA Support Meeting

  Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

Event Series Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

Event Series LHON – Northeast Connect

LHON – Northeast Connect

This call is for those living in the Northeast with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. The Northeast includes all the New England states (Maine, Vermont, New Hampshire, Massachusetts, Connecticut, & Rhode Island), New York, New Jersey, and Pennsylvania. There are various Facebook groups […]

Event Series Moms of LHON – Affected “Kids of All Ages”

Moms of LHON – Affected “Kids of All Ages”

If you're a mom of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at [email protected] with any questions. There's also a Facebook group for Moms of LHON-Affected "Kids of All Ages" located at this link: https://www.facebook.com/groups/1862093300546686 Join Details: One option is to use Internet Audio to […]

LHON – New York, New Jersey, Pennsylvania Connect

Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]