Energy for Life Walk: Charlotte
Mint Museum - Randolph 2730 Randolph Road, Charlotte, NC, United StatesEnergy for Life Walkathon: Charlotte 2023 When: November 4, 2023 Where: The Mint - Randolph 2730 Randolph Road | Charlotte, NC 28207 Contact: jordan.rogers@umdf.org Event Schedule 8:30 am - Walk Registration 9:30 am - Opening Ceremony 10:00 am - 1 Mile Walk Starts Register Today Register today Donate now Register to walk with us […]
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]
LHON – Teens
This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
UMDF Ask the Mito Doc Webcast Series – Special Coffee & Conversation with Mito Docs and Ambassadors
Join us for a special Ask the Mito Doc with Coffee & Conversation Breakout Rooms - informal round table discussion format with a Mito Clinician(s), UMDF Ambassador(s), and UMDF Staff.
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person. Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]
LHON – Pacific Northwest Connect
This is a call for those living in the Pacific Northwest with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation.
Cousins for a Cure – Virtual Event
special virtual fundraising event Thursday, November 16, 2023 7:00 pm Please join us for an extraordinary fundraising event benefitting the United Mitochondrial Disease Foundation's Logan Sloane Aronson Research Fund for mitochondrial disease in honor of Sydney Breslow. 100% of the proceeds from this event will support the Logan Sloane Aronson Research Fund for mitochondrial disease in […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
Run for Austin
Saturday, November 18, 2023 - 9:00 A.M. In Person Race and Kick-Off Event Cove Island Park Stamford, CT Post-Race Event Join us for a post-race event at Third Place by Half Full Brewery 575 Pacific Street Stamford, CT 06902 10:30 am - 1:30 pm VIRTUAL Event Can't make it in person? Participate in a 5k […]
Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015 You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]