BEGIN:VCALENDAR VERSION:2.0 PRODID:-//UMDF - ECPv6.15.20//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:UMDF X-ORIGINAL-URL:https://umdf.org X-WR-CALDESC:Events for UMDF REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20270314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20271107T060000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Los_Angeles BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20250309T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20251102T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20260308T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20261101T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20270314T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20271107T090000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Chicago BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20250309T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20251102T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20260308T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20261101T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20270314T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20271107T070000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20260302T100000 DTEND;TZID=America/New_York:20260302T110000 DTSTAMP:20260423T110109 CREATED:20220301T170012Z LAST-MODIFIED:20220923T194001Z UID:10004445-1772445600-1772449200@umdf.org SUMMARY:California Virtual Support Group Meeting DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nMonday\, March 7 • 10:00pm – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Astellas • Jack Edwards Family Impact Fund URL:https://umdf.org/event/california-virtual-support-group-meeting/2026-03-02/ CATEGORIES:Pacific,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20260302T100000 DTEND;TZID=America/Los_Angeles:20260302T110000 DTSTAMP:20260423T110109 CREATED:20240708T192355Z LAST-MODIFIED:20250828T233020Z UID:10003194-1772445600-1772449200@umdf.org SUMMARY:California Virtual Support Group Meeting DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2026-03-02/ CATEGORIES:Pacific,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260303T200000 DTEND;TZID=America/New_York:20260303T210000 DTSTAMP:20260423T110109 CREATED:20260226T144955Z LAST-MODIFIED:20260226T144955Z UID:10004424-1772568000-1772571600@umdf.org SUMMARY:LHON - Affected Women DESCRIPTION:If you’re a woman with LHON vision (affected)\, consider joining the call and sharing your experiences with others in a similar situation. Reach out to Jessica Loomer jessica.loomer@gmail.com with any questions. \nThere’s also a Facebook group for LHON-Affected Women located at this link: https://www.facebook.com/groups/404650029721330 \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871# \nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here:\nhttps://zoom.us/u/aYbvpoNU9\nThe Meeting ID is: 95371313871 URL:https://umdf.org/event/lhon-affected-women/2026-03-03/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260304T120000 DTEND;TZID=America/New_York:20260304T130000 DTSTAMP:20260423T110109 CREATED:20250225T190610Z LAST-MODIFIED:20251107T154248Z UID:10003768-1772625600-1772629200@umdf.org SUMMARY:Volunteer Interest Meeting DESCRIPTION:Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie — whether they be in support\, advocacy\, or fundraising toward treatments — you could be a change maker for patients and families impacted by #mitochondrialdisease. Register here: https://umdf.secure.nonprofitsoapbox.com/vol \n  URL:https://umdf.org/event/volunteer-interest-meeting-2025/2026-03-04/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260304T200000 DTEND;TZID=America/New_York:20260304T210000 DTSTAMP:20260423T110109 CREATED:20250227T153450Z LAST-MODIFIED:20250313T133520Z UID:10003795-1772654400-1772658000@umdf.org SUMMARY:LHON Live! Monthly Call DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings \n  URL:https://umdf.org/event/lhon-live-monthly-call/2026-03-04/ CATEGORIES:LHON,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260305T200000 DTEND;TZID=America/New_York:20260305T210000 DTSTAMP:20260423T110109 CREATED:20231019T142537Z LAST-MODIFIED:20251209T192747Z UID:10002433-1772740800-1772744400@umdf.org SUMMARY:Adult Virtual Support Meeting DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n  URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2026-03-05/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260306T200000 DTEND;TZID=America/New_York:20260306T210000 DTSTAMP:20260423T110109 CREATED:20250113T183749Z LAST-MODIFIED:20250113T183753Z UID:10002148-1772827200-1772830800@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-03-06/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260309T120000 DTEND;TZID=America/New_York:20260309T130000 DTSTAMP:20260423T110109 CREATED:20260119T234036Z LAST-MODIFIED:20260306T190202Z UID:10004342-1773057600-1773061200@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and Clinical Research Pavilion DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. NOTE: This is a combined UMDF Bench-to-Bedside and Ask the Mito Doc Webcast \n\nJoin us on March 9\, 2026\nat 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern \nClick Here to Register \nAgenda \n\nClinical Trial Readiness – Mito Med Conference Clinical Research Pavilion 2025 Learnings and Prepping for 2026\nNOTE: This is a combined UMDF Bench-to-Bedside and Ask the Mito Doc Webcast \nModerator: Amel Karaa\, MD \nSpeakers: \n\nZuela Zolkipli Cunningham\, MD\, Children’s Hospital of Philadelphia\nCarlo Tacconi\, CEO\, mHealth Technologies\, Bolgna\, Italy\nSabato Mellone\, PhD\, University of Bologna\, Italy\nDamiano Zanotto\, PhD\, Stevens Institute of Technology\, Hoboken\, NJ\nTony Adams\, MD\, Gentle Jogger\nNicole Wilson\, UMDF Program Manager\n\n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us March 9\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-clinical-trial-readiness-crp/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260309T180000 DTEND;TZID=America/New_York:20260309T193000 DTSTAMP:20260423T110109 CREATED:20250206T191443Z LAST-MODIFIED:20260309T143751Z UID:10004455-1773079200-1773084600@umdf.org SUMMARY:LHON South Central Connect DESCRIPTION:This call is for those living in the South Central region with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThe South Central region includes Texas\, Oklahoma\, Arkansas\, and Louisiana. \nThere’s also a Facebook group: LHON-Texas\, Oklahoma\, Arkansas\, & Louisiana \nReach out to Donna Basse at sbasse5472@aol.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\n\nMeeting ID: 953 7131 3871\n\nOr join by phone with one tap mobile:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871# \n  \n\n\n\n\n\nMore details\nMore details\nCopy to my calendar\nCopy to my calendar URL:https://umdf.org/event/lhon-south-central-connect/2026-03-09/ CATEGORIES:LHON,Support Meeting END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260310T200000 DTEND;TZID=America/New_York:20260310T210000 DTSTAMP:20260423T110109 CREATED:20260226T145735Z LAST-MODIFIED:20260226T145852Z UID:10004429-1773172800-1773176400@umdf.org SUMMARY:LHON - Northeast Connect DESCRIPTION:This call is for those living in the Northeast with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThe Northeast includes all the New England states (Maine\, Vermont\, New Hampshire\, Massachusetts\, Connecticut\, & Rhode Island)\, New York\, New Jersey\, and Pennsylvania. \nThere are various Facebook groups for these locations: \n  \n\nNew England Group\nNew York Group\nNew Jersey Group\nPennsylvania Group\n\n  \nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871# URL:https://umdf.org/event/lhon-northeast-connect/2026-03-10/ CATEGORIES:LHON END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260311T120000 DTEND;TZID=America/New_York:20260311T130000 DTSTAMP:20260423T110109 CREATED:20250108T144422Z LAST-MODIFIED:20250121T173952Z UID:10003574-1773230400-1773234000@umdf.org SUMMARY:Support Group for All DESCRIPTION:When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting: \nhttps://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. URL:https://umdf.org/event/support-group-for-all/2026-03-11/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260313T200000 DTEND;TZID=America/New_York:20260313T210000 DTSTAMP:20260423T110109 CREATED:20250113T183749Z LAST-MODIFIED:20250113T183753Z UID:10002149-1773432000-1773435600@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-03-13/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260316T200000 DTEND;TZID=America/New_York:20260316T210000 DTSTAMP:20260423T110109 CREATED:20240117T130219Z LAST-MODIFIED:20260209T142232Z UID:10003861-1773691200-1773694800@umdf.org SUMMARY:Parent and Caregiver Virtual Support Meeting DESCRIPTION:Parent and Caregiver Virtual Support Meeting \nHello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe THIRD Monday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@umdf.org \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund URL:https://umdf.org/event/parent-and-caregiver-virtual-support-meeting/2026-03-16/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260319T190000 DTEND;TZID=America/New_York:20260319T200000 DTSTAMP:20260423T110109 CREATED:20210727T145309Z LAST-MODIFIED:20210727T145309Z UID:10001160-1773946800-1773950400@umdf.org SUMMARY:LHON - New York\, New Jersey\, Pennsylvania Connect DESCRIPTION:Please Join Us! \nThis call for those living in New York\, New Jersey\, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. \nThe following Facebook Groups are also available: \n\nNew York Group – Click here\nNew Jersey Group – Click here\nPennsylvania Group – Click here\n\nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US URL:https://umdf.org/event/lhon-new-york-new-jersey-pennsylvania-connect-2024-12-19/ CATEGORIES:LHON,Support Meeting ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260320T120000 DTEND;TZID=America/New_York:20260320T130000 DTSTAMP:20260423T110110 CREATED:20260120T165910Z LAST-MODIFIED:20260120T170003Z UID:10004343-1774008000-1774011600@umdf.org SUMMARY:UMDF Ask the Mito Doc Special Webcast – Updates on New TK2d Therapy Kygevvi DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on March 20\, 2026\nat 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern \nClick Here to Register \nAgenda \n\nUMDF Ask the Mito Doc Special Webcast – Updates on New TK2d Therapy Kygevvi \nSpeaker – Sarah Chang\, PhD\, Medical Strategy Lead\, UCB \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us March 20\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-special-webcast-updates-tk2d-therapy-kygevvi/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260320T200000 DTEND;TZID=America/New_York:20260320T210000 DTSTAMP:20260423T110110 CREATED:20250113T183749Z LAST-MODIFIED:20250113T183753Z UID:10002150-1774036800-1774040400@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-03-20/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260321T100000 DTEND;TZID=America/New_York:20260321T120000 DTSTAMP:20260423T110110 CREATED:20240111T130250Z LAST-MODIFIED:20250206T185233Z UID:10002979-1774087200-1774094400@umdf.org SUMMARY:Northeast PA Support Meeting DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2026-03-21/ CATEGORIES:Northeast ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260324T120000 DTEND;TZID=America/New_York:20260324T133000 DTSTAMP:20260423T110110 CREATED:20251124T175816Z LAST-MODIFIED:20251205T200913Z UID:10004210-1774353600-1774359000@umdf.org SUMMARY:Mindfulness with Mary Series (monthly) DESCRIPTION:Please join us for a monthly Mindfulness series with UMDF Support Ambassador\, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. \nYou can register HERE URL:https://umdf.org/event/mindfulness-with-mary-series-2-2-2/2026-03-24/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260326T190000 DTEND;TZID=America/Chicago:20260326T200000 DTSTAMP:20260423T110110 CREATED:20240620T144219Z LAST-MODIFIED:20251209T192223Z UID:10001404-1774551600-1774555200@umdf.org SUMMARY:Central Region Virtual Support Meeting DESCRIPTION:Central Region Virtual Support Meeting \nUMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nFourth Thursday of each month • 7:00pm – 8:00pm Central \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061 Ext 105. \nVisit the UMDF Event Calendar for all updates and upcoming events here.  \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Jack Edwards Family Impact Fund URL:https://umdf.org/event/central-region-virtual-support-meeting-2/2026-03-26/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260327T200000 DTEND;TZID=America/New_York:20260327T210000 DTSTAMP:20260423T110110 CREATED:20250113T183749Z LAST-MODIFIED:20250113T183753Z UID:10002151-1774641600-1774645200@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-03-27/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260401T200000 DTEND;TZID=America/New_York:20260401T210000 DTSTAMP:20260423T110110 CREATED:20250227T153450Z LAST-MODIFIED:20250313T133520Z UID:10003796-1775073600-1775077200@umdf.org SUMMARY:LHON Live! Monthly Call DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings \n  URL:https://umdf.org/event/lhon-live-monthly-call/2026-04-01/ CATEGORIES:LHON,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260402T200000 DTEND;TZID=America/New_York:20260402T210000 DTSTAMP:20260423T110110 CREATED:20231019T142537Z LAST-MODIFIED:20251209T192747Z UID:10002434-1775160000-1775163600@umdf.org SUMMARY:Adult Virtual Support Meeting DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n  URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2026-04-02/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260403T200000 DTEND;TZID=America/New_York:20260403T210000 DTSTAMP:20260423T110110 CREATED:20250113T183749Z LAST-MODIFIED:20250113T183753Z UID:10002152-1775246400-1775250000@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-04-03/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20260406T100000 DTEND;TZID=America/Los_Angeles:20260406T110000 DTSTAMP:20260423T110110 CREATED:20240708T192355Z LAST-MODIFIED:20250828T233020Z UID:10003195-1775469600-1775473200@umdf.org SUMMARY:California Virtual Support Group Meeting DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2026-04-06/ CATEGORIES:Pacific,Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260408T120000 DTEND;TZID=America/New_York:20260408T130000 DTSTAMP:20260423T110110 CREATED:20250108T144422Z LAST-MODIFIED:20250121T173952Z UID:10003575-1775649600-1775653200@umdf.org SUMMARY:Support Group for All DESCRIPTION:When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting: \nhttps://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. URL:https://umdf.org/event/support-group-for-all/2026-04-08/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260408T220000 DTEND;TZID=America/New_York:20260408T233000 DTSTAMP:20260423T110110 CREATED:20241001T160506Z LAST-MODIFIED:20250313T140407Z UID:10003975-1775685600-1775691000@umdf.org SUMMARY:LHON West Connect DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871# URL:https://umdf.org/event/lhon-west-connect/2026-04-08/ CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260409T200000 DTEND;TZID=America/New_York:20260409T210000 DTSTAMP:20260423T110110 CREATED:20240109T032102Z LAST-MODIFIED:20250313T195021Z UID:10004029-1775764800-1775768400@umdf.org SUMMARY:LHON Southeast Connect DESCRIPTION:Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area. \nThis call is for those living in the DC area\, Georgia\, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThere are also Facebook groups for these areas: \n  \n\nDC area: https://www.facebook.com/groups/243446586122096\nGeorgia: https://www.facebook.com/groups/2157760391116970\nFlorida: https://www.facebook.com/groups/867332836666024\n\n  \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871# URL:https://umdf.org/event/lhon-southeast-connect/2026-04-09/ CATEGORIES:LHON,Southeast,Support Meeting ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260410T200000 DTEND;TZID=America/New_York:20260410T210000 DTSTAMP:20260423T110110 CREATED:20250113T183749Z LAST-MODIFIED:20250113T183753Z UID:10002153-1775851200-1775854800@umdf.org SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35 DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-04-10/ CATEGORIES:Support Meeting ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260415T190000 DTEND;TZID=America/New_York:20260415T200000 DTSTAMP:20260423T110110 CREATED:20260127T020154Z LAST-MODIFIED:20260127T195457Z UID:10004344-1776279600-1776283200@umdf.org SUMMARY:UMDF Ask the Mito Doc Webcast Series – Genetics 101 DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers.  \n\nJoin us on April 15\, 2026\nat 4:00pm Pacific/5:00pm Mountain/6:00pm Central/7:00pm Eastern \nClick Here to Register \nAgenda \n\nGenetics 101\n \nModerator: Margaret Moore\, UMDF Associate Director of Support & Education \nSpeaker: Fernando Scaglia\, MD\, Baylor College of Medicine\, Houston\, TX \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@umdf.org.  \nClick Here to Submit Your Question! \nWe hope you can join us April 15\, 2026.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.  \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \n  \n \n  URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-genetics-101/ CATEGORIES:Ask the Mito Doc,Education ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260415T200000 DTEND;TZID=America/New_York:20260415T213000 DTSTAMP:20260423T110110 CREATED:20250206T185144Z LAST-MODIFIED:20260309T144427Z UID:10004395-1776283200-1776288600@umdf.org SUMMARY:Dads of LHON - Affected "Kids of All Ages" DESCRIPTION:The bimonthly call for Dads of LHON-Affected “Kids of All Ages” takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you’re a dad of someone affected by LHON\, consider joining the call and sharing your experiences with others in a similar situation.  Hosts Tony Wright and Jim Tolve host this open-discussion format call. Reach out to Jim Tolve at jetragnar@gmail.com or Tony Wright at AWright201@gmail.com with any questions. \nThere’s also a Facebook group for Dads of LHON-Affected”Kids of All Ages” located at this link: https://www.facebook.com/groups/175672076390420 \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871# URL:https://umdf.org/event/dads-of-lhon-affected-kids-of-all-ages/2026-04-15/ CATEGORIES:LHON,Support Meeting END:VEVENT END:VCALENDAR