LHON Sisterhood
Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation.
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]
LHON Southeast Connect
This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
Energy for Life Walkathon San Francisco Bay Area – Virtual
Energy for Life Walkathon San Francisco Bay Area - Virtual Get registered at www.energyforlifewalk.org/sanfrancisco - create a team, join a team or walk as an individual. When: June 10, 2023 […]
Energy for Life Walkathon Pittsburgh
North Shore - Great Lawn 400 North Shore Drive, Pittsburgh, PA, United StatesEnergy for Life Walkathon Pittsburgh Get registered at www.energyforlifewalk.org/pittsburgh - create a team, join a team or walk as an individual. When: June 10, 2023 Where: Great Lawn at North […]
LHON – New England Connect
This is a call for those living in New England with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation.
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York We have a speaker this month! Physical Therapist, Matt Owcarz, PT will join us and will discuss the role of physical therapy […]
LHON – New York, New Jersey, Pennsylvania Connect
This call is for those living in New York, New Jersey, or Pennsylvania with an interest in LHON. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
Energy for Life Walk and 5K St. Louis
Tower Grove Park 4256 Magnolia Avenue, St. Louis, MO, United StatesEnergy for Life Walk and 5K St. Louis Get registered at www.energyforlifewalk.org/stlouis - create a team, join a team or walk as an individual. When: June 10, 2023 Where: Tower […]
Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA […]