Energy for Life Walk: Delaware Valley
Pennington Park 801 Creek Road, Delanco, New JerseyEnergy for Life Walkathon: Delaware Valley 2023 When: September 10, 2023 Where: Pennington Park 801 Creek Road | Delanco, NJ 08075 Contact: jordan.rogers@5mr.c80.myftpupload.com Schedule of Events 10:30 am - Walk Registration 11:30 am - Opening Ceremony 12:00 pm - 1 Mile Walk Starts Register Today Register today Donate now Register to walk with us […]
TK2d Awareness Day
Join us as we mark the second global TK2d Awareness Day. Thymidine kinase 2 deficiency (TK2d) is a rare genetic mitochondrial disease that causes muscle issues often severely impacting a patient's motor skills, breathing, and eating. TK2d is caused by inherited mutations in TK2, a nuclear gene responsible for making a mitochondrial enzyme called thymidine […]
Dine to Donate – EFL Detroit
Honey Tree Grill 15540 Sheldon Road, Northville, MITeen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
Energy for Life Walk: Kansas City
Lowenstein Park 1901 NW Lowenstein Dr, Lee's Summit, MOEnergy for Life Walkathon: Kansas City 2023 When: September 16, 2023 Where: Lowenstein Park, Shelters 1 & 2 901 NW Lowenstein Drive | Lee's Summit, MO 64081 Contact: events@5mr.c80.myftpupload.com Schedule of Events 9:00 am - Walk Registration & Family Fun Activities 10:00 am - Opening Ceremony 10:30 am - 1 Mile Walk Starts 12:00 […]
Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015 You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]
Energy for Life Walk: Columbus
Wolfe Park Shelter House 105 Park Drive, Columbus, OhioEnergy for Life Walkathon: Columbus 2023 When: September 17, 2023 Where: Wolfe Park Shelterhouse 105 Park Drive | Columbus, OH 43209 Contact: jordan.rogers@5mr.c80.myftpupload.com Schedule of Events 9:00 am - Walk Registration 9:45 am - Opening Ceremony 10:00 am - 1 Mile Walk Starts Register Today Register today Donate now Register to walk with us […]
CHOP 4th annual Mitochondrial Medicine Education Day
Children’s Hospital of Philadelphia (CHOP) is hosting this full-day virtual event for clinicians, researchers and others who care for patients with complex mitochondrial disorders. Speakers will include world-renowned mitochondrial disease clinicians and researchers from CHOP, the University of Pennsylvania and other organizations. Click Here for Details!
UMDF Ask the Mito Doc Webcast Series – Best Practices within a Mitochondrial Care Network Team – Navigating Patient Care
We are exciting to kick off the fall Ask the Mito Doc Monthly webcast series with one of the Mitochondrial Care Network Teams - join us and have your questions ready!
UMDF and MEPAN – Special Virtual Meet the Researcher Webcast
Join us Thursday, September 21 at 11:00 AM ET/10:00 AM CT/8:00 AM PT Click Here to Register The UMDF is working with our MEPAN families to organize this special virtual webcast to share information from this past June's meeting in Charlotte. Speakers and/or scientific attendees with an interest or experience with Mito Transfer/Fatty Acid Synthesis […]
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person. Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]