Energy for Life Walk – Delaware Valley

Pennington Park 801 Creek Road, Delanco, New Jersey

ENERGY FOR LIFE WALK DELAWARE VALLEY LOCATION Pennington Park SCHEDULE Site Opens: 10:30 AM Opening Ceremony: 11:30 AM CONTACT Monika Hancock - 412-225-9066

Event Series LHON Live! Monthly Call

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy […]

Energy for Life Walk – Chicago

Katherine Legge Memorial Park 5901 County Line Road, Hinsdale, IL, United States

ENERGY FOR LIFE WALK CHICAGO LOCATION Katherine Legge Memorial Park SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Angela Sommer - 412-744-1066

TK2d Tuesday

Thymidine kinase 2 deficiency (TK2d) is a rare mitochondrial disease that impacts people around the world. TK2d Tuesday is the second Tuesday of September and is meant to celebrate the TK2d community and its resilience. Learn more at umdf.org/tk2d.  

LHON-Affected Women

If you're a woman with LHON vision (affected), consider joining the call and sharing your experiences with others in a similar situation. Reach out to Jessica Loomer [email protected] with any questions. There's also a Facebook group for LHON-Affected Women located at this link: https://www.facebook.com/groups/404650029721330 Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 […]

Energy for Life Walk – Kansas City

Lowenstein Park 1901 NW Lowenstein Dr, Lee's Summit, MO

ENERGY FOR LIFE WALK KANSAS CITY SEPTEMBER 14, 2024 LOCATION Lowenstein Park 1901 NW Lowenstein Dr Lee's Summit, MO 64081 SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Deidra Atchley - 913-208-8725 Monika Hancock- 412-225-9066

Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

LHON Awareness Day

Leber hereditary optic neuropathy (LHON) is a rare inherited mitochondrial disorder. Its primary symptom is sudden, painless loss of central vision. Learn more at https://umdf.org/LHON.