Event Series LHON – Teens

LHON – Teens

This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

LHON Assistive Technology

This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive […]

UMDF Bench-to-Bedside Clinical Trials Update – Part 1

UMDF Bench-to-Bedside - Clinical Trials Update - Part 1 Moderator: Philip Yeske, PhD Click Here to Register Natalie Yivgi Ohana, PhD - Minovia Therapeutics Vijay Modur, MD, PhD - BPGbio Inc. Katies Landes, Executive […]

LHON – Texas/Oklahoma/ Arkansas/Louisiana Connect

NOTE: Since the meeting is intended for those living in Texas/Oklahoma/Arkansas/Louisiana, this virtual meeting is set in Central Time. This call for those living in Texas, Oklahoma, Arkansas, and Louisiana […]