Energy for Life Walk: Orlando
Blanchard Park 2451 Dean Road, Orlando, PA, United StatesEnergy for Life Walkathon: Orlando 2023 When: October 7, 2023 Where: Blanchard Park, Pavilion 2 2451 Dean Road | Union Park, FL 32817 Contact: jordan.rogers@umdf.org Event Schedule 9:00 am - Walk Registration 10:00 am - Opening Ceremony 10:30 am - 1 Mile Walk Starts Register Today Register today Donate now Register to walk with […]
Energy for Life Walk: Central Texas
TMI Episcopal 20955 W. Tejas Trail, San Antonio, TXEnergy for Life Walkathon: Central Texas 2023 When: October 7, 2023 Where: TMI Episcopal 20955 W. Tejas Trail | San Antonio, TX 78257 Contact: events@umdf.org Schedule of Events 10:00 am - Walk Registration 11:00 am - Opening Ceremony 11:30 am - 1 Mile Walk Starts 1:00 pm - Closing Ceremony Register Today Register today […]
LHON – Teens
This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.
UMDF Ask the Mito Doc Webcast Series – Diet, Nutrition and Nutraceuticals for the Mitochondrial Disease Patient
Diet and Nutrition is extremely important to the mitochondrial disease patient. Join us to hear from Dr. Mark Tarnopolsky, an expert in diet, nutrition, and nutraceuticals.
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm EST/5:00pm PST. Hosts Tony Wright and Jim Tolve host this open-discussion format call. If you're a […]
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person. Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]
LHON Sisterhood
Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation.
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015 You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]
LHON Assistive Technology Meeting
This Zoom event is for anyone interested in discussing LHON & Assistive Technology. T