Run for Austin

Cove Island Park 1125 Cove Road, Stamford, CT, United States

Run for Austin Saturday, November 23, 2024 - 9:00 A.M. In Person Race and Kick-Off Event Cove Island Park Stamford, CT Post-Race Event Join us for a post-race event at […]

Event Series LHON – Teens

LHON – Teens

This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

LHON Assistive Technology

This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive […]

UMDF Bench-to-Bedside Clinical Trials Update – Part 1

UMDF Bench-to-Bedside - Clinical Trials Update - Part 1 Moderator: Philip Yeske, PhD Click Here to Register  Natalie Yivgi Ohana, PhD - Minovia Therapeutics  Vijay Modur, MD, PhD - BPGbio Inc.  Katies Landes, Executive Director - […]