Energy for Life Walk: Orlando

Blanchard Park 2451 Dean Road, Orlando, PA, United States

Energy for Life Walkathon: Orlando 2023   When: October 7, 2023 Where: Blanchard Park,  Pavilion 2 2451 Dean Road | Union Park, FL 32817 Contact: jordan.rogers@umdf.org Event Schedule 9:00 am - Walk Registration 10:00 am - Opening Ceremony 10:30 am - 1 Mile Walk Starts Register Today Register today Donate now Register to walk with […]

Energy for Life Walk: Central Texas

TMI Episcopal 20955 W. Tejas Trail, San Antonio, TX

Energy for Life Walkathon: Central Texas 2023   When: October 7, 2023 Where: TMI Episcopal 20955 W. Tejas Trail | San Antonio, TX 78257 Contact: events@umdf.org Schedule of Events 10:00 am - Walk Registration 11:00 am - Opening Ceremony 11:30 am - 1 Mile Walk Starts 1:00 pm - Closing Ceremony Register Today Register today […]

Event Series LHON – Teens

LHON – Teens

This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.

Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

Event Series Western New York Support Meeting

Western New York Support Meeting

"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person.  Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]

Event Series LHON Sisterhood

LHON Sisterhood

Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation.

Northeast PA Support Meeting

  Support Meeting- Northeast PA Third Saturday of each Month- In-Person 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]