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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261116T200000
DTEND;TZID=America/New_York:20261116T210000
DTSTAMP:20260424T213236
CREATED:20240117T130219Z
LAST-MODIFIED:20260209T142232Z
UID:10003869-1794859200-1794862800@umdf.org
SUMMARY:Parent and Caregiver Virtual Support Meeting
DESCRIPTION:Parent and Caregiver Virtual Support Meeting \nHello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe THIRD Monday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@umdf.org \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund
URL:https://umdf.org/event/parent-and-caregiver-virtual-support-meeting/2026-11-16/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261117T200000
DTEND;TZID=America/New_York:20261117T210000
DTSTAMP:20260424T213236
CREATED:20260226T145735Z
LAST-MODIFIED:20260226T145852Z
UID:10004428-1794945600-1794949200@umdf.org
SUMMARY:LHON - Northeast Connect
DESCRIPTION:This call is for those living in the Northeast with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThe Northeast includes all the New England states (Maine\, Vermont\, New Hampshire\, Massachusetts\, Connecticut\, & Rhode Island)\, New York\, New Jersey\, and Pennsylvania. \nThere are various Facebook groups for these locations: \n  \n\nNew England Group\nNew York Group\nNew Jersey Group\nPennsylvania Group\n\n  \nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-northeast-connect/2026-11-17/
CATEGORIES:LHON
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261118T200000
DTEND;TZID=America/New_York:20261118T213000
DTSTAMP:20260424T213236
CREATED:20250206T190510Z
LAST-MODIFIED:20260309T144907Z
UID:10004459-1795032000-1795037400@umdf.org
SUMMARY:Moms of LHON - Affected "Kids of All Ages"
DESCRIPTION:If you’re a mom of someone affected by LHON\, consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. \nThere’s also a Facebook group for Moms of LHON-Affected “Kids of All Ages” located at this link: https://www.facebook.com/groups/1862093300546686 \nJoin Details: \nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/moms-of-lhon-affected-kids-of-all-ages/2026-11-18/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261120T200000
DTEND;TZID=America/New_York:20261120T210000
DTSTAMP:20260424T213236
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002185-1795204800-1795208400@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-11-20/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261121T100000
DTEND;TZID=America/New_York:20261121T120000
DTSTAMP:20260424T213236
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10002987-1795255200-1795262400@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2026-11-21/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261124T120000
DTEND;TZID=America/New_York:20261124T133000
DTSTAMP:20260424T213237
CREATED:20251124T175816Z
LAST-MODIFIED:20251205T200913Z
UID:10003369-1795521600-1795527000@umdf.org
SUMMARY:Mindfulness with Mary Series (monthly)
DESCRIPTION:Please join us for a monthly Mindfulness series with UMDF Support Ambassador\, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. \nYou can register HERE
URL:https://umdf.org/event/mindfulness-with-mary-series-2-2-2/2026-11-24/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261126T190000
DTEND;TZID=America/Chicago:20261126T200000
DTSTAMP:20260424T213237
CREATED:20240620T144219Z
LAST-MODIFIED:20251209T192223Z
UID:10001412-1795719600-1795723200@umdf.org
SUMMARY:Central Region Virtual Support Meeting
DESCRIPTION:Central Region Virtual Support Meeting \nUMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nFourth Thursday of each month • 7:00pm – 8:00pm Central \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061 Ext 105. \nVisit the UMDF Event Calendar for all updates and upcoming events here.  \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Jack Edwards Family Impact Fund
URL:https://umdf.org/event/central-region-virtual-support-meeting-2/2026-11-26/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261127T200000
DTEND;TZID=America/New_York:20261127T210000
DTSTAMP:20260424T213237
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002186-1795809600-1795813200@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-11-27/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261202T120000
DTEND;TZID=America/New_York:20261202T130000
DTSTAMP:20260424T213237
CREATED:20250225T190610Z
LAST-MODIFIED:20251107T154248Z
UID:10003771-1796212800-1796216400@umdf.org
SUMMARY:Volunteer Interest Meeting
DESCRIPTION:Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie — whether they be in support\, advocacy\, or fundraising toward treatments — you could be a change maker for patients and families impacted by #mitochondrialdisease. Register here: https://umdf.secure.nonprofitsoapbox.com/vol \n 
URL:https://umdf.org/event/volunteer-interest-meeting-2025/2026-12-02/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261202T200000
DTEND;TZID=America/New_York:20261202T210000
DTSTAMP:20260424T213237
CREATED:20250227T153450Z
LAST-MODIFIED:20250313T133520Z
UID:10003804-1796241600-1796245200@umdf.org
SUMMARY:LHON Live! Monthly Call
DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings  \n 
URL:https://umdf.org/event/lhon-live-monthly-call/2026-12-02/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261203T200000
DTEND;TZID=America/New_York:20261203T210000
DTSTAMP:20260424T213237
CREATED:20231019T142537Z
LAST-MODIFIED:20251209T192747Z
UID:10002442-1796328000-1796331600@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2026-12-03/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261203T200000
DTEND;TZID=America/New_York:20261203T210000
DTSTAMP:20260424T213237
CREATED:20260226T163004Z
LAST-MODIFIED:20260226T163004Z
UID:10004444-1796328000-1796331600@umdf.org
SUMMARY:LHON - Navigating Employment/Careers
DESCRIPTION:This Zoom event is for anyone interested in discussing Navigating Employment/Careers with LHON. Bring your questions and comments to share with the group. \nThere is also a Facebook group: Navigating Employment/Careers with LHON\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\n\nMeeting ID: 953 7131 3871\n\nOr join by phone with one tap mobile:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#\n\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871#\nFor callers in other countries\, find your local number here:\nhttps://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871
URL:https://umdf.org/event/lhon-navigating-employment-careers/2026-12-03/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261204T200000
DTEND;TZID=America/New_York:20261204T210000
DTSTAMP:20260424T213237
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002187-1796414400-1796418000@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-12-04/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20261207T100000
DTEND;TZID=America/Los_Angeles:20261207T110000
DTSTAMP:20260424T213237
CREATED:20240708T192355Z
LAST-MODIFIED:20250828T233020Z
UID:10003203-1796637600-1796641200@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2026-12-07/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261208T200000
DTEND;TZID=America/New_York:20261208T213000
DTSTAMP:20260424T213237
CREATED:20250129T211459Z
LAST-MODIFIED:20260309T143327Z
UID:10004449-1796760000-1796765400@umdf.org
SUMMARY:LHON Sisterhood
DESCRIPTION:LHON Sisterhood \nAre you a woman who carries an LHON mutation? Whether you’re affected by LHON symptoms or not\, you’re invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation. \nIf you are a female who carries an LHON mutation\, we invite you to join this call and our Facebook group. If you are not\, but you know a woman impacted by LHON in this way who would benefit from this call and Facebook group\, and from being part of the LHON Sisterhood community\, please invite them to join us! \nReach out to Scarlet Keolanui Dreifuss at scarletkeolanui@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-sisterhood-3/2026-12-08/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261209T120000
DTEND;TZID=America/New_York:20261209T130000
DTSTAMP:20260424T213237
CREATED:20250108T144422Z
LAST-MODIFIED:20250121T173952Z
UID:10003583-1796817600-1796821200@umdf.org
SUMMARY:Support Group for All
DESCRIPTION:When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) \nRegister in advance for this meeting: \nhttps://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.
URL:https://umdf.org/event/support-group-for-all/2026-12-09/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261209T220000
DTEND;TZID=America/New_York:20261209T233000
DTSTAMP:20260424T213237
CREATED:20241001T160506Z
LAST-MODIFIED:20250313T140407Z
UID:10003977-1796853600-1796859000@umdf.org
SUMMARY:LHON West Connect
DESCRIPTION:The LHON Southwest & LHON Pacific Northwest groups have merged!\n\nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions. \nThere are also Facebook groups for those in the Southwest & Northwest areas: \n\nSouthwest: https://www.facebook.com/groups/1634812156795801\nNorthwest: https://www.facebook.com/groups/240239936350807\n\nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to  one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-west-connect/2026-12-09/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting,West
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261210T200000
DTEND;TZID=America/New_York:20261210T210000
DTSTAMP:20260424T213237
CREATED:20240109T032102Z
LAST-MODIFIED:20250313T195021Z
UID:10004031-1796932800-1796936400@umdf.org
SUMMARY:LHON Southeast Connect
DESCRIPTION:Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area. \nThis call is for those living in the DC area\, Georgia\, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. \nThere are also Facebook groups for these areas: \n  \n\nDC area: https://www.facebook.com/groups/243446586122096\nGeorgia: https://www.facebook.com/groups/2157760391116970\nFlorida: https://www.facebook.com/groups/867332836666024\n\n  \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-southeast-connect/2026-12-10/
CATEGORIES:LHON,Southeast,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261211T200000
DTEND;TZID=America/New_York:20261211T210000
DTSTAMP:20260424T213237
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002188-1797019200-1797022800@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-12-11/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261214T200000
DTEND;TZID=America/New_York:20261214T210000
DTSTAMP:20260424T213237
CREATED:20250313T131930Z
LAST-MODIFIED:20260309T145304Z
UID:10004460-1797278400-1797282000@umdf.org
SUMMARY:LHON Midwest Connect
DESCRIPTION:This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-midwest-connect/2026-12-14/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261216T200000
DTEND;TZID=America/New_York:20261216T213000
DTSTAMP:20260424T213237
CREATED:20250206T185144Z
LAST-MODIFIED:20260309T144427Z
UID:10004399-1797451200-1797456600@umdf.org
SUMMARY:Dads of LHON - Affected "Kids of All Ages"
DESCRIPTION:The bimonthly call for Dads of LHON-Affected “Kids of All Ages” takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you’re a dad of someone affected by LHON\, consider joining the call and sharing your experiences with others in a similar situation.  Hosts Tony Wright and Jim Tolve host this open-discussion format call. Reach out to Jim Tolve at jetragnar@gmail.com or Tony Wright at AWright201@gmail.com with any questions. \nThere’s also a Facebook group for Dads of LHON-Affected”Kids of All Ages” located at this link: https://www.facebook.com/groups/175672076390420 \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/dads-of-lhon-affected-kids-of-all-ages/2026-12-16/
CATEGORIES:LHON,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261217T190000
DTEND;TZID=America/New_York:20261217T200000
DTSTAMP:20260424T213237
CREATED:20210727T145309Z
LAST-MODIFIED:20210727T145309Z
UID:10001163-1797534000-1797537600@umdf.org
SUMMARY:LHON - New York\, New Jersey\, Pennsylvania Connect
DESCRIPTION:Please Join Us! \nThis call for those living in New York\, New Jersey\, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. \nThe following Facebook Groups are also available: \n\nNew York Group – Click here\nNew Jersey Group – Click here\nPennsylvania Group – Click here\n\nReach out to Jim Tolve at jetragnar@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at:\nhttps://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call:\n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US
URL:https://umdf.org/event/lhon-new-york-new-jersey-pennsylvania-connect-2024-12-19/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261218T200000
DTEND;TZID=America/New_York:20261218T210000
DTSTAMP:20260424T213237
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002189-1797624000-1797627600@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-12-18/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261219T100000
DTEND;TZID=America/New_York:20261219T120000
DTSTAMP:20260424T213237
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10002988-1797674400-1797681600@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2026-12-19/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261221T200000
DTEND;TZID=America/New_York:20261221T210000
DTSTAMP:20260424T213237
CREATED:20240117T130219Z
LAST-MODIFIED:20260209T142232Z
UID:10003870-1797883200-1797886800@umdf.org
SUMMARY:Parent and Caregiver Virtual Support Meeting
DESCRIPTION:Parent and Caregiver Virtual Support Meeting \nHello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe THIRD Monday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@umdf.org \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund
URL:https://umdf.org/event/parent-and-caregiver-virtual-support-meeting/2026-12-21/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261222T120000
DTEND;TZID=America/New_York:20261222T133000
DTSTAMP:20260424T213237
CREATED:20251124T175816Z
LAST-MODIFIED:20251205T200913Z
UID:10004218-1797940800-1797946200@umdf.org
SUMMARY:Mindfulness with Mary Series (monthly)
DESCRIPTION:Please join us for a monthly Mindfulness series with UMDF Support Ambassador\, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. \nYou can register HERE
URL:https://umdf.org/event/mindfulness-with-mary-series-2-2-2/2026-12-22/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261224T190000
DTEND;TZID=America/Chicago:20261224T200000
DTSTAMP:20260424T213237
CREATED:20240620T144219Z
LAST-MODIFIED:20251209T192223Z
UID:10001413-1798138800-1798142400@umdf.org
SUMMARY:Central Region Virtual Support Meeting
DESCRIPTION:Central Region Virtual Support Meeting \nUMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nFourth Thursday of each month • 7:00pm – 8:00pm Central \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061 Ext 105. \nVisit the UMDF Event Calendar for all updates and upcoming events here.  \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Jack Edwards Family Impact Fund
URL:https://umdf.org/event/central-region-virtual-support-meeting-2/2026-12-24/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261225T200000
DTEND;TZID=America/New_York:20261225T210000
DTSTAMP:20260424T213237
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002190-1798228800-1798232400@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2026-12-25/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270101T200000
DTEND;TZID=America/New_York:20270101T210000
DTSTAMP:20260424T213237
CREATED:20250113T183749Z
LAST-MODIFIED:20250113T183753Z
UID:10002191-1798833600-1798837200@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@umdf.org
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3-2/2027-01-01/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20270104T100000
DTEND;TZID=America/Los_Angeles:20270104T110000
DTSTAMP:20260424T213237
CREATED:20240708T192355Z
LAST-MODIFIED:20250828T233020Z
UID:10003204-1799056800-1799060400@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2027-01-04/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
END:VCALENDAR