Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
UMDF and MEPAN – Special Virtual Meet the Researcher Webcast
Join us Thursday, September 21 at 11:00 AM ET/10:00 AM CT/8:00 AM PT Click Here to Register The UMDF is working with our MEPAN families to organize this special virtual webcast to share information from this past June's meeting in Charlotte. Speakers and/or scientific attendees with an interest or experience with Mito Transfer/Fatty Acid Synthesis […]
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person. Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]
LHON – New York, New Jersey, Pennsylvania Connect
This call is for those living in New York, New Jersey, or Pennsylvania with an interest in LHON. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. There's also a Facebook group for those in New York located at this link: New […]
CHOP 4th Annual Next Generation Therapeutics Virtual Panel
For the past three years, the Mitochondrial Medicine team from Children’s Hospital of Philadelphia (CHOP) has convened a virtual Next Generation Therapeutics panel to spark discussion between clinicians, industry leaders, patients and families affected by mitochondrial disease. CHOP is thrilled to host the 4th Annual Next Generation Therapeutics Virtual Panel, presented by UCB, from 10 a.m. to noon […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
Energy for Life Walk: Detroit
Rotary Park Six Mile Road & Hubbard Street, Livonia, MI, United StatesEnergy for Life Walkathon: Detroit 2023 When: September 23, 2023 Where: Rotary Park, Pavilions 3 & 4 Six Mile Rd & Hubbard St | Livonia, MI 48152 Contact: events@umdf.org Schedule of Events 9:00 am - Walk Registration, Bake Sale & Auction Kick-off 10:00 am - Opening Ceremony 10:30 am - 1 Mile Walk Starts 11:30 […]
Central Region Virtual Support Meeting
Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Thursday, January 26 • 7:00pm – 8:00pm Central Learn […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
Energy for Life Walk: National
7400 Sand Point Way NE, Seattle, WAEnergy for Life Walkathon: National - Walk your Way! When: September 30, 2023 Where: Your neighborhood or park Contact: jordan.rogers@umdf.org Register Today Register today Donate now Register to walk with us by forming a team, joining a team, or coming out and walking as an individual. Sponsorship opportunities available for businesses of all sizes! […]
Energy for Life Walk: Southern Wisconsin
Fox River Park W264S4500 River Road, Waukesha, WI, United StatesEnergy for Life Walkathon: Southern Wisconsin 2023 When: September 30, 2023 Where: Fox River Park, Picnic Area #2 W264S4500 River Road | Waukesha, WI 53189 Contact: events@umdf.org Schedule of Events 9:00 am - Walk Registration 10:00 am - Opening Ceremony 10:30 am - 1 Mile Walk Starts 11:30 am - Closing Ceremony Register Today […]
Energy for Life Walk: Seattle
Warren G. Magnuson Park 7400 Sand Point Way NE, Seattle, WAEnergy for Life Walkathon: Seattle 2023 When: October 1, 2023 Where: Warren G. Magnuson Park 7400 Sand Point Way NE | Seattle, WA 98115 Contact: jordan.rogers@umdf.org Event Schedule 8:30 am - Walk Registration 9:10 am - Opening Ceremony 9:30 am - 1 Mile & 5K Walk Starts Register Today Register today Donate now Register […]