UMDF/MitoAction – Voice of the Pyruvate Dehydrogenase Complex Deficiency (PDCD) FDA Listening Session
The U.S. Food and Drug Administration (FDA) has just confirmed a virtual FDA listening session, co-hosted by the United Mitochondrial Disease Foundation and MitoAction, focused on Pyruvate Dehydrogenase Complex Deficiency (PDCD). The session, The Voice of the Pyruvate Dehydrogenase Complex Deficiency (PDCD) Patient Community, will be held virtually on Friday, September 8, 2023 from 1:00pm to 2:30pm ET. FDA listening sessions […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
Energy for Life Walk: Indianapolis
Coxhall Gardens Children's Pavilion 11677 Towne Road, Carmel, INEnergy for Life Walkathon: Indianapolis 2023 When: September 9, 2023 Where: Coxhall Gardens Children's Pavilion 11677 Towne Road | Carmel, IN 46032 Contact: events@umdf.org Schedule of Events 10:00 am - Walk Registration 11:00 am - Opening Ceremony 11:15 am - Walk Starts Register Today Register today Donate now Register to walk with us by […]
Energy for Life Walk: Chicago
Katherine Legge Memorial Park 5901 County Line Road, Hinsdale, IL, United StatesEnergy for Life Walkathon: Chicago 2023 When: September 10, 2023 Where: Katherine Legge Memorial Park 5901 S County Line Road | Hinsdale, IL 60521 Contact: events@umdf.org Schedule of Events 9:00 am - Walk Registration, Music, & Activities! 10:00 am - Opening Ceremony 10:30 am - Walk Starts 11:30 am - Picnic and Closing Ceremony […]
Energy for Life Walk: Delaware Valley
Pennington Park 801 Creek Road, Delanco, New JerseyEnergy for Life Walkathon: Delaware Valley 2023 When: September 10, 2023 Where: Pennington Park 801 Creek Road | Delanco, NJ 08075 Contact: jordan.rogers@umdf.org Schedule of Events 10:30 am - Walk Registration 11:30 am - Opening Ceremony 12:00 pm - 1 Mile Walk Starts Register Today Register today Donate now Register to walk with us […]
LHON – Texas/Oklahoma/ Arkansas/Louisiana Connect
This call is for those living in Texas, Oklahoma, Arkansas and Louisiana, with an interest in LHON. Host Donna Basse facilitates this call. Consider joining the call and sharing your experiences with others in a similar situation.
TK2d Awareness Day
Join us as we mark the second global TK2d Awareness Day. Thymidine kinase 2 deficiency (TK2d) is a rare genetic mitochondrial disease that causes muscle issues often severely impacting a patient's motor skills, breathing, and eating. TK2d is caused by inherited mutations in TK2, a nuclear gene responsible for making a mitochondrial enzyme called thymidine […]
LHON – New England Connect
This is a call for those living in New England with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation.
LHON – New England Connect
This is a call for those living in New England with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation.
LHON – New England Connect
This is a call for those living in New England with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation.
Dine to Donate – EFL Detroit
Honey Tree Grill 15540 Sheldon Road, Northville, MILHON Southeast Connect
This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.