Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm EST/5:00pm PST. Hosts Tony Wright and Jim Tolve host this open-discussion format call. If you're a […]
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person. Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]
Energy for Life Walkathon Houston
Sugar Land Memorial Park 15300 University Blvd, Sugar Land, TexasEnergy for Life Walkathon Houston Get registered at www.energyforlifewalk.org/houston - create a team, join a team or walk as an individual. When: April 22, 2023 Where: Sugar Land Memorial Park 15300 University Blvd. Sugar Land, TX 77479 Schedule of Events: 9:00 AM - Registration Starts 10:00 AM - Opening Ceremony 10:30 AM - 1 Mile […]
LHON Assistive Technology Meeting
This Zoom event is for anyone interested in discussing LHON & Assistive Technology. T
UMDF Ask the Mito Doc Webcast Series – Endocrine Complications of Mitochondrial Disease
We are looking forward to hearing from Dr. Shana McCormack and Dr. David Weber to better understand Endocrine Disorders of Mitochondrial Disease.
Central Region Virtual Support Meeting
Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Thursday, January 26 • 7:00pm – 8:00pm Central Learn […]
Energy for Life Walk and 5K Dallas Fort Worth
River Legacy Park 701 NW Green Oaks Blvd, Arlington, TX, United StatesEnergy for Life Walk and 5K Dallas Fort Worth Get registered at www.energyforlifewalk.org/dallasfortworth - create a team, join a team or walk as an individual. When: April 29, 2023 Where: River Legacy Park Legacy Pavilion 701 NW Green Oaks Blvd Arlington, TX 76006 Schedule of Events: 7:30 AM - Runner Registration 8:30 AM - 5K […]
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: […]
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
Navigating Education with LHON
NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who would benefit from this discussion to join […]
LHON – Teens
This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.