TK2d Awareness Day
Join us as we mark the second global TK2d Awareness Day. Thymidine kinase 2 deficiency (TK2d) is a rare genetic mitochondrial disease that causes muscle issues often severely impacting a patient's motor skills, breathing, and eating. TK2d is caused by inherited mutations in TK2, a nuclear gene responsible for making a mitochondrial enzyme called thymidine […]
LHON – New England Connect
This is a call for those living in New England with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation.
LHON – New England Connect
This is a call for those living in New England with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation.
LHON – New England Connect
This is a call for those living in New England with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation.
Dine to Donate – EFL Detroit
Honey Tree Grill 15540 Sheldon Road, Northville, MILHON Southeast Connect
This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
Energy for Life Walk: Kansas City
Lowenstein Park 1901 NW Lowenstein Dr, Lee's Summit, MOEnergy for Life Walkathon: Kansas City 2023 When: September 16, 2023 Where: Lowenstein Park, Shelters 1 & 2 901 NW Lowenstein Drive | Lee's Summit, MO 64081 Contact: events@umdf.org Schedule of Events 9:00 am - Walk Registration & Family Fun Activities 10:00 am - Opening Ceremony 10:30 am - 1 Mile Walk Starts 12:00 […]
Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015 You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]
Energy for Life Walk: Columbus
Wolfe Park Shelter House 105 Park Drive, Columbus, OhioEnergy for Life Walkathon: Columbus 2023 When: September 17, 2023 Where: Wolfe Park Shelterhouse 105 Park Drive | Columbus, OH 43209 Contact: jordan.rogers@umdf.org Schedule of Events 9:00 am - Walk Registration 9:45 am - Opening Ceremony 10:00 am - 1 Mile Walk Starts Register Today Register today Donate now Register to walk with us […]
World Mitochondrial Disease Awareness Week
Join friends and families from around the world on September 18-24, 2023 to raise awareness of mitochondrial disease (mito) on a global scale through educational, fundraising and advocacy activities.
CHOP 4th annual Mitochondrial Medicine Education Day
Children’s Hospital of Philadelphia (CHOP) is hosting this full-day virtual event for clinicians, researchers and others who care for patients with complex mitochondrial disorders. Speakers will include world-renowned mitochondrial disease clinicians and researchers from CHOP, the University of Pennsylvania and other organizations. Click Here for Details!