UMDF

LHON - Northeast Connect
2026-11-17 20:00 - 21:00 (America/New_York)
This call is for those living in the Northeast with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
The Northeast includes all the New England states (Maine, Vermont, New Hampshire, Massachusetts, Connecticut, & Rhode Island), New York, New Jersey, and Pennsylvania.
There are various Facebook groups for these locations:

New England Group
New York Group
New Jersey Group
Pennsylvania Group

Reach out to Jim Tolve at jetragnar@gmail.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

Moms of LHON - Affected "Kids of All Ages"
2026-11-18 20:00 - 21:30 (America/New_York)
If you’re a mom of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions.
There’s also a Facebook group for Moms of LHON-Affected “Kids of All Ages” located at this link: https://www.facebook.com/groups/1862093300546686
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

Teen and Young Adult Virtual Meet-Up Ages 16-35
2026-11-20 20:00 - 21:00, 2026-11-27 20:00 - 21:00, 2026-12-04 20:00 - 21:00, 2026-12-11 20:00 - 21:00, 2026-12-18 20:00 - 21:00, 2026-12-25 20:00 - 21:00, 2027-01-01 20:00 - 21:00 (America/New_York)
UMDF Teen/Young Adult
“Virtual Meet-Up”
Teens and Young Adults Age 16-35
Every Friday!
8:00pm ET
Join us EVERY Friday for a VIRTUAL Meet-Up!
Join us for this “Virtual Meet-Up”! It is tough being stuck at home, but you are not alone. Let’s get together, share coping tips and have some FUN!
UMDF Support Ambassadors, Kristi Dellinger and Devin Shuman will lead these calls.
See you on Friday!
Register in advance for this meeting:
If you registered last week, you can use the same information to join every week!
Click Here to Register Now
After registering, you will receive a confirmation email containing information about joining the meeting.
If you have questions, please email Margaret Moore at margaret.moore@umdf.org

Northeast PA Support Meeting
2026-11-21 10:00 - 12:00, 2026-12-19 10:00 - 12:00 (America/New_York)
Support Meeting- Northeast PA
Third Saturday of each Month- In-Person
10:00pm – 12:00pm Eastern
St. Luke’s Hospital
Priscilla Payne Hurd Education Room
Room 104
801 Ostrum Street
Bethlehem, PA 18015

You are not alone. Join us to share coping tips and connect with others.
We will meet the 3rd Saturday of each month!
1:00pm – 3:00pm
For questions, please contact Grace Robinson or Janelle Frank, the Support Group Leaders:
gracerobinson13@gmail.com or janelle.frank13@gmail.com

Mindfulness with Mary Series (monthly)
2026-11-24 12:00 - 13:30, 2026-12-22 12:00 - 13:30 (America/New_York)
Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET.
You can register HERE

Central Region Virtual Support Meeting
2026-11-26 19:00 - 20:00, 2026-12-24 19:00 - 20:00 (America/Chicago)
Central Region Virtual Support Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone.
Fourth Thursday of each month • 7:00pm – 8:00pm Central
Learn more & register here.
Registration is required, and you will receive a confirmation email with information to join the meeting. If you have any questions, contact Margaret Moore at margaret.moore@umdf.org or 412-744-1061 Ext 105.
Visit the UMDF Event Calendar for all updates and upcoming events here.
Special Thanks to our Sponsors
Edith L. Trees Charitable Trust • Jack Edwards Family Impact Fund

Volunteer Interest Meeting
2026-12-02 12:00 - 13:00 (America/New_York)
Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie — whether they be in support, advocacy, or fundraising toward treatments — you could be a change maker for patients and families impacted by #mitochondrialdisease. Register here: https://umdf.secure.nonprofitsoapbox.com/vol

LHON Live! Monthly Call
2026-12-02 20:00 - 21:00, 2027-01-06 20:00 - 21:00 (America/New_York)
NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time.
This call is for everyone interested in LHON…those affected, carriers, or sighted supporters…all are welcome. You can speak up and share your thoughts, or just listen to what others have to say…It’s your call! Hosts Jessica Loomer and Andy Marks facilitate this call.
Recordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/
Reach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+13017158592,,95371313871# US
+13126266799,,95371313871# US
Canada: +16475580588,,95371313871#
Australia: +61280152088,,95371313871#
UK: +442034815240,,95371313871#
For callers in other countries, find your local number here: https://zoom.us/u/aYbvpoNU9
Meeting ID: 953 7131 3871
Click Here for Previous LHON Live! Recordings

Adult Virtual Support Meeting
2026-12-03 20:00 - 21:00 (America/New_York)
Adult Virtual Support Meeting
Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting.
We will get to know each other, share resources, and build community!
Join us for a VIRTUAL MEETING!
The FIRST Thursday of every month!
8:00pm-9:00pm ET
Register HERE
After registering, you will receive a confirmation email containing information about joining the meeting.
For questions, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com
THANK YOU TO OUR SPONSORS
Edith L. Trees Charitable Trust
Astellas
Jack Edwards Family Impact Fund

LHON - Navigating Employment/Careers
2026-12-03 20:00 - 21:00 (America/New_York)
This Zoom event is for anyone interested in discussing Navigating Employment/Careers with LHON. Bring your questions and comments to share with the group.
There is also a Facebook group: Navigating Employment/Careers with LHON

Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871

Meeting ID: 953 7131 3871

Or join by phone with one tap mobile:
+16699006833,,95371313871#
+16468769923,,95371313871#

Canada: +16475580588,,95371313871#
Australia: +61280152088,,95371313871#
UK: +442034815240,,95371313871#
For callers in other countries, find your local number here:
https://zoom.us/u/aYbvpoNU9
Meeting ID: 953 7131 3871

California Virtual Support Group Meeting
2026-12-07 10:00 - 11:00, 2027-01-04 10:00 - 11:00 (America/Los_Angeles)
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone.
The first Monday of each month• 10:00am – 11:00am Pacific
Learn more & register here.
Registration is required, and you will receive a confirmation email with information to join the meeting. If you have any questions, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553.
Visit the UMDF Event Calendar for all updates and upcoming events here.
Special Thanks to our Sponsors
Edith L. Trees Charitable Trust

LHON Sisterhood
2026-12-08 20:00 - 21:30 (America/New_York)
LHON Sisterhood
Are you a woman who carries an LHON mutation? Whether you’re affected by LHON symptoms or not, you’re invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation.
If you are a female who carries an LHON mutation, we invite you to join this call and our Facebook group. If you are not, but you know a woman impacted by LHON in this way who would benefit from this call and Facebook group, and from being part of the LHON Sisterhood community, please invite them to join us!
Reach out to Scarlet Keolanui Dreifuss at scarletkeolanui@gmail.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

Support Group for All
2026-12-09 12:00 - 13:00 (America/New_York)
When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada)
Register in advance for this meeting:
https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt
After registering, you will receive a confirmation email containing information about joining the meeting.

LHON West Connect
2026-12-09 22:00 - 23:30 (America/New_York)
The LHON Southwest & LHON Pacific Northwest groups have merged!

This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any questions.
There are also Facebook groups for those in the Southwest & Northwest areas:

Southwest: https://www.facebook.com/groups/1634812156795801
Northwest: https://www.facebook.com/groups/240239936350807

Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

LHON Southeast Connect
2026-12-10 20:00 - 21:00 (America/New_York)
Note: The DC-Area group merged with this group at the end of 2024. Please join this call moving forward if you are in the DC area.
This call is for those living in the DC area, Georgia, and Florida with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
There are also Facebook groups for these areas:

DC area: https://www.facebook.com/groups/243446586122096
Georgia: https://www.facebook.com/groups/2157760391116970
Florida: https://www.facebook.com/groups/867332836666024

Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

LHON Midwest Connect
2026-12-14 20:00 - 21:00 (America/New_York)
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

Dads of LHON - Affected "Kids of All Ages"
2026-12-16 20:00 - 21:30 (America/New_York)
The bimonthly call for Dads of LHON-Affected “Kids of All Ages” takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you’re a dad of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation. Hosts Tony Wright and Jim Tolve host this open-discussion format call. Reach out to Jim Tolve at jetragnar@gmail.com or Tony Wright at AWright201@gmail.com with any questions.
There’s also a Facebook group for Dads of LHON-Affected”Kids of All Ages” located at this link: https://www.facebook.com/groups/175672076390420
Join Details:
One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+16699006833,,95371313871#
+16468769923,,95371313871#

LHON - New York, New Jersey, Pennsylvania Connect
2026-12-17 19:00 - 20:00 (America/New_York)
Please Join Us!
This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation.
The following Facebook Groups are also available:

New York Group – Click here
New Jersey Group – Click here
Pennsylvania Group – Click here

Reach out to Jim Tolve at jetragnar@gmail.com with any questions.
Join Details:
One option is to use Internet Audio to call at no charge at:
https://umdf.zoom.us/j/95371313871
Meeting ID: 953 7131 3871
Or if your phone plan includes Unlimited Minutes, then here are Toll Charge numbers to one-click call:
+13017158592,,95371313871# US
+13126266799,,95371313871# US

Parent and Caregiver Virtual Support Meeting
2026-12-21 20:00 - 21:00 (America/New_York)
Parent and Caregiver Virtual Support Meeting
Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting.
We will get to know each other, share resources, and build community!
Join us for a VIRTUAL MEETING!
The THIRD Monday of every month!
8:00pm-9:00pm ET
Register HERE
After registering, you will receive a confirmation email containing information about joining the meeting.
For questions, please email Margaret Moore at: margaret.moore@umdf.org
THANK YOU TO OUR SPONSORS
Edith L. Trees Charitable Trust
Astellas
Jack Edwards Family Impact Fund
