Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm EST/5:00pm PST. Hosts Tony Wright and Jim Tolve host this open-discussion format call. If you're a […]
UMDF Ask the Mito Doc Webcast Series – Gastrointestinal Manifestations of Mitochondrial Disease
Many mitochondrial patients have gastrointestinal issues...join us to hear from Dr. Ambartsumyan from Seattle Children's and ask your GI questions!
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]
UMDF Ask the Mito Doc Webcast Series – What is Mitochondrial Disease?
We are pleased to offer this Mito Basics primer...for those who are newly diagnosed OR for those who need a refresher on mito, join Dr. Amy Goldstein and Dr. Sonal Sharma and ask your questions!
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm EST/5:00pm PST. Hosts Tony Wright and Jim Tolve host this open-discussion format call. If you're a […]
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]
TK2d Virtual Support Meeting June 2022
TK2d "Virtual" Support Meeting Are you or your loved one impacted by TK2 (Thymidine Kinase 2) deficiency? If so, please join us for a Virtual Support Meeting! We will get to know each other, share resources and build community! Representatives from Zogenix, will be joining us, Join us for a VIRTUAL MEETING! Thursday, June 23,2022 12:00 […]
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Wednesday, July 6 • 10:00pm – 11:00am Pacific Learn more & register here. […]
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]
Run 4 Raley
15TH ANNUAL RUN4RALEY TWILIGHT 5K RUN, 1 MILE WALK AND KIDS MITO DASH The Streets of Philo Washington Street Philo, IL 61864 What you need to know about our Event... Run4Raley is a 5k Race with a Kids Mito Dash and 1 Mile Walk. The Kids Mito Dash will be 1/4 mile long and ribbons […]
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm EST/5:00pm PST. Hosts Tony Wright and Jim Tolve host this open-discussion format call. If you're a […]
EFL Team Captain Rally Call
Calling all Team Captains! If you are, have ever been or are interested in becoming a Team Captain, this virtual call is for you! We are hosting a Rally Call for all team captains (and their co-captains) to come together, meet and learn from each other. During our one hour together, we will discuss ways […]