Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

Event Series Central Region Virtual Support Meeting

Central Region Virtual Support Meeting

Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Thursday, January 26 • 7:00pm – 8:00pm Central Learn […]

10th Annual Nicholas Torpey Memorial Golf Classic

Cracklewood Golf Course 18215 24 Mile, Macomb, MI, United States

Please join us as we honor Nicholas’ memory by raising funds for The United Mitochondrial Disease Foundation to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders. CLICK HERE to view the event flyer, which includes sponsorship and payment information. 10th Annual Nicholas Torpey Memorial Golf Classic Sunday, August 27, 2023 […]

Event Series LHON Live! Monthly Call

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call:  […]

Event Series Adult Virtual Support Meeting

Adult Virtual Support Meeting

Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]

Event Series LHON – Teens

LHON – Teens

This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.

UMDF/MitoAction – Voice of the Pyruvate Dehydrogenase Complex Deficiency (PDCD) FDA Listening Session

The U.S. Food and Drug Administration (FDA) has just confirmed a virtual FDA listening session, co-hosted by the United Mitochondrial Disease Foundation and MitoAction, focused on Pyruvate Dehydrogenase Complex Deficiency (PDCD). The session, The Voice of the Pyruvate Dehydrogenase Complex Deficiency (PDCD) Patient Community, will be held virtually on Friday, September 8, 2023 from 1:00pm to 2:30pm ET. FDA listening sessions […]

Energy for Life Walk: Indianapolis

Coxhall Gardens Children's Pavilion 11677 Towne Road, Carmel, IN

Energy for Life Walkathon: Indianapolis 2023   When: September 9, 2023 Where: Coxhall Gardens Children's Pavilion 11677 Towne Road | Carmel, IN 46032 Contact: events@umdf.org Schedule of Events 10:00 am - Walk Registration 11:00 am - Opening Ceremony 11:15 am - Walk Starts Register Today Register today Donate now Register to walk with us by […]