BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//UMDF - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:UMDF
X-ORIGINAL-URL:https://umdf.org
X-WR-CALDESC:Events for UMDF
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Los_Angeles
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20230312T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20231105T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20240310T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20241103T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20250309T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20251102T090000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Chicago
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20230312T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20231105T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20240310T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20241103T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20250309T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20251102T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240921T090000
DTEND;TZID=America/New_York:20240921T113000
DTSTAMP:20260423T074625
CREATED:20240909T180914Z
LAST-MODIFIED:20240909T180914Z
UID:10003157-1726909200-1726918200@umdf.org
SUMMARY:Energy for Life Walk - Columbus
DESCRIPTION:ENERGY FOR LIFE WALK COLUMBUS \nSEPTEMBER 21\, 2024 \n\nLOCATION\nWolfe Park Shelterhouse \nSCHEDULE\nSite Opens: 9:00 AM\nOpening Ceremony: 9:45 AM \nCONTACT \nAngela Sommer – 412-744-1066
URL:https://umdf.org/event/energy-for-life-walk-columbus-2/
LOCATION:Wolfe Park Shelter House\, 105 Park Drive\, Columbus\, Ohio\, 43209
CATEGORIES:EFL,Family Friendly,Fundraising
ORGANIZER;CN="Angela Sommer":MAILTO:angela.sommer@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240921T090000
DTEND;TZID=America/New_York:20240921T113000
DTSTAMP:20260423T074625
CREATED:20240909T180436Z
LAST-MODIFIED:20240909T180436Z
UID:10003155-1726909200-1726918200@umdf.org
SUMMARY:Energy for Life Walk - Southern Wisconsin
DESCRIPTION:ENERGY FOR LIFE WALK SO. WISCONSIN \nSEPTEMBER 21\, 2024 \n\nLOCATION\nFox Brook Park \nSCHEDULE\nSite Opens: 9:00 AM\nOpening Ceremony: 10:00 AM \nCONTACT\nMonika Hancock – 412-225-9066
URL:https://umdf.org/event/energy-for-life-walk-swisconsin/
LOCATION:Fox Brook Park\, 2925 N Barker Rd\, Brookfield\, WI\, 53045
CATEGORIES:EFL,Family Friendly,Fundraising
ORGANIZER;CN="Monika Hancock":MAILTO:monika.hancock@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240921T090000
DTEND;TZID=America/New_York:20240921T113000
DTSTAMP:20260423T074625
CREATED:20240909T180155Z
LAST-MODIFIED:20240909T180255Z
UID:10003154-1726909200-1726918200@umdf.org
SUMMARY:Energy for Life Walk - Detroit
DESCRIPTION:ENERGY FOR LIFE WALK DETROIT \nSEPTEMBER 21\, 2024 \n\nLOCATION\nRotary Park – Pavilions 3 & 4 \nSCHEDULE\nSite Opens: 9:00 AM\nOpening Ceremony: 10:00 AM \nCONTACT\nMonika Hancock – 412-225-9066
URL:https://umdf.org/event/energy-for-life-walk-detroit-2/
LOCATION:Rotary Park\, Six Mile Road & Hubbard Street\, Livonia\, MI\, 48152\, United States
CATEGORIES:EFL,Family Friendly,Fundraising
ORGANIZER;CN="Monika Hancock":MAILTO:monika.hancock@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240920T200000
DTEND;TZID=America/New_York:20240920T210000
DTSTAMP:20260423T074625
CREATED:20230622T182147Z
LAST-MODIFIED:20230622T182745Z
UID:10002072-1726862400-1726866000@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-09-20/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240919
DTEND;VALUE=DATE:20240920
DTSTAMP:20260423T074625
CREATED:20240826T144450Z
LAST-MODIFIED:20240826T144735Z
UID:10003078-1726704000-1726790399@umdf.org
SUMMARY:LHON Awareness Day
DESCRIPTION:Leber hereditary optic neuropathy (LHON) is a rare inherited mitochondrial disorder. Its primary symptom is sudden\, painless loss of central vision. Learn more at https://umdf.org/LHON.
URL:https://umdf.org/event/lhon-awareness-day-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240917
DTEND;VALUE=DATE:20240918
DTSTAMP:20260423T074625
CREATED:20240912T143124Z
LAST-MODIFIED:20240912T143124Z
UID:10003164-1726531200-1726617599@umdf.org
SUMMARY:Leigh Syndrome Awareness Day
DESCRIPTION:
URL:https://umdf.org/event/leigh-syndrome-awareness-day/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240916
DTEND;VALUE=DATE:20240923
DTSTAMP:20260423T074625
CREATED:20240820T163612Z
LAST-MODIFIED:20240820T163810Z
UID:10003076-1726444800-1727049599@umdf.org
SUMMARY:World Mitochondrial Disease Awareness Week
DESCRIPTION:Energize the Fight – World Mitochondrial Disease Week 2024 \nWe’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease Week\, September 16-22\, 2024! Together\, we can promote understanding and recognition with the hope that increased awareness\, attention\, and funds will move the needle toward effective treatments and cures for the entire mito community. \nTK2d Tuesday – September 10 \nUMDF Virtual Capitol Hill Day – September 17\nLHON Awareness Day – September 19\nFDA Listening Meeting on Genetic Therapy Treatments for Rare Diseases – September 20\, 11am-4:30pm ET\nGlobal Light Up for Mito – September 21 \nMore info on global events and initiatives: mitochondrialdiseaseweek.org  \n  \n  \nEnergize the Fight – World Mitochondrial Disease Week 2024
URL:https://umdf.org/event/world-mitochondrial-disease-awareness-week-3/
CATEGORIES:Education,Family Friendly,Fundraising,Give Back,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240914T090000
DTEND;TZID=America/New_York:20240921T113000
DTSTAMP:20260423T074625
CREATED:20240909T181131Z
LAST-MODIFIED:20240909T181131Z
UID:10003158-1726304400-1726918200@umdf.org
SUMMARY:Energy for Life Walk - National (Virtual)
DESCRIPTION:ENERGY FOR LIFE WALK NATIONAL \nSEPTEMBER 14 – 21\, 2024 \n\nLOCATION\nA Venue of Your Choice! \nSCHEDULE \nA Start of Your Choice! \nCONTACT\nMonika Hancock – 412-225-9066\nAngela Sommer – 412-539-9450
URL:https://umdf.org/event/energy-for-life-walk-national-2/
CATEGORIES:EFL,Family Friendly,Fundraising
ORGANIZER;CN="Angela Sommer":MAILTO:angela.sommer@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240914T090000
DTEND;TZID=America/New_York:20240914T113000
DTSTAMP:20260423T074625
CREATED:20240909T175935Z
LAST-MODIFIED:20240909T175935Z
UID:10003153-1726304400-1726313400@umdf.org
SUMMARY:Energy for Life Walk - Kansas City
DESCRIPTION:ENERGY FOR LIFE WALK KANSAS CITY \nSEPTEMBER 14\, 2024 \n\nLOCATION\nLowenstein Park\n1901 NW Lowenstein Dr\nLee’s Summit\, MO 64081 \nSCHEDULE\nSite Opens: 9:00 AM\nOpening Ceremony: 10:00 AM \nCONTACT\nDeidra Atchley – 913-208-8725\nMonika Hancock- 412-225-9066
URL:https://umdf.org/event/energy-for-life-walk-kansas-city/
LOCATION:Lowenstein Park\, 1901 NW Lowenstein Dr\, Lee's Summit\, MO\, 64081
CATEGORIES:EFL,Family Friendly,Fundraising
ORGANIZER;CN="Monika Hancock":MAILTO:monika.hancock@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240913T200000
DTEND;TZID=America/New_York:20240913T210000
DTSTAMP:20260423T074625
CREATED:20230622T182147Z
LAST-MODIFIED:20230622T182745Z
UID:10002071-1726257600-1726261200@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-09-13/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240912T193000
DTEND;TZID=America/New_York:20240912T203000
DTSTAMP:20260423T074625
CREATED:20240619T021100Z
LAST-MODIFIED:20240826T222516Z
UID:10003056-1726169400-1726173000@umdf.org
SUMMARY:UMDF Ask the Mito Doc Webcast Series – Understanding Genetic Testing
DESCRIPTION:The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month\, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers. \n\nJoin us on September 12\, 2024\nat 4:30pm Pacific/5:30pm Mountain/6:30pm Central/7:30pm Eastern \nClick Here to Register \nAgenda \n\nUnderstanding Genetic Testing\nSpeakers:\nAustin Larson\, MD\, Children’s Hospital of Colorado\, Aurora\, CO\nEva Morava-Kozicz\, MD\, PhD\, Icahn School of Medicine at Mount Sinai\, New York\, NY\nIbrahim Elsharkawi\, MD\, Icahn School of Medicine at Mount Sinai\, New York\, NY \n  \n\n\nWe invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before\, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response\, please do not hesitate to contact us at margaret.moore@5mr.c80.myftpupload.com.  \nClick Here to Submit Your Question! \nWe hope you can join us on September 12\, 2024.  Registration is required.  After registering\, you will receive a confirmation email with Zoom credentials.  \nIf you are new to using ZOOM\, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061\, ext 105. \nWe are committed to providing needed support for our patient community.   \nCall our support line at 1-888-900-MITO to speak with a member of our patient services team.\nAlways remember\, we are here to help you and your family through your journey! \nSpecial Thanks to \nEdith L. Trees Charitable Trust\n  \n \n 
URL:https://umdf.org/event/umdf-ask-the-mito-doc-webcast-series-understandinggt2024/
CATEGORIES:Ask the Mito Doc,Education
ORGANIZER;CN="Kara Strittmatter":MAILTO:kara@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240910
DTEND;VALUE=DATE:20240911
DTSTAMP:20260423T074625
CREATED:20240826T144244Z
LAST-MODIFIED:20240826T144244Z
UID:10003077-1725926400-1726012799@umdf.org
SUMMARY:TK2d Tuesday
DESCRIPTION:Thymidine kinase 2 deficiency (TK2d) is a rare mitochondrial disease that impacts people around the world. TK2d Tuesday is the second Tuesday of September and is meant to celebrate the TK2d community and its resilience. Learn more at umdf.org/tk2d. \n 
URL:https://umdf.org/event/tk2d-tuesday/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240908T090000
DTEND;TZID=America/New_York:20240908T113000
DTSTAMP:20260423T074625
CREATED:20240909T175620Z
LAST-MODIFIED:20240909T175620Z
UID:10003152-1725786000-1725795000@umdf.org
SUMMARY:Energy for Life Walk - Chicago
DESCRIPTION:ENERGY FOR LIFE WALK CHICAGO \n\nLOCATION\nKatherine Legge Memorial Park \nSCHEDULE\nSite Opens: 9:00 AM\nOpening Ceremony: 10:00 AM \nCONTACT\nAngela Sommer – 412-744-1066
URL:https://umdf.org/event/energy-for-life-walk-chicago-2/
LOCATION:Katherine Legge Memorial Park\, 5901 County Line Road\, Hinsdale\, IL\, 60521\, United States
CATEGORIES:EFL,Family Friendly,Fundraising
ORGANIZER;CN="Angela Sommer":MAILTO:angela.sommer@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240907T200000
DTEND;TZID=America/New_York:20240907T210000
DTSTAMP:20260423T074625
CREATED:20250109T015842Z
LAST-MODIFIED:20250129T212652Z
UID:10003738-1725739200-1725742800@umdf.org
SUMMARY:LHON Live! Monthly Call
DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings  \n 
URL:https://umdf.org/event/lhon-live-monthly-call-2-2-2-3/2024-09-07/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240907T103000
DTEND;TZID=America/New_York:20240907T133000
DTSTAMP:20260423T074625
CREATED:20240826T154255Z
LAST-MODIFIED:20240826T154255Z
UID:10003080-1725705000-1725715800@umdf.org
SUMMARY:Energy for Life Walk - Delaware Valley
DESCRIPTION:ENERGY FOR LIFE WALK DELAWARE VALLEY \n\nLOCATION\nPennington Park \nSCHEDULE\nSite Opens: 10:30 AM\nOpening Ceremony: 11:30 AM \nCONTACT\nMonika Hancock – 412-225-9066
URL:https://umdf.org/event/energy-for-life-walk-delawarevalley/
LOCATION:Pennington Park\, 801 Creek Road\, Delanco\, New Jersey\, 08075
CATEGORIES:EFL,Family Friendly,Fundraising
ORGANIZER;CN="Monika Hancock":MAILTO:monika.hancock@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240907T100000
DTEND;TZID=America/New_York:20240907T130000
DTSTAMP:20260423T074625
CREATED:20240826T153519Z
LAST-MODIFIED:20240826T153519Z
UID:10003079-1725703200-1725714000@umdf.org
SUMMARY:Energy for Life Walk - Indianapolis
DESCRIPTION:ENERGY FOR LIFE WALK INDIANAPOLIS \n\nLOCATION\nCoxhall Gardens – Children’s Pavilion \nSCHEDULE\nSite Opens: 10:00 AM\nOpening Ceremony: 11:00 AM \nCONTACT\nMonika Hancock – 412-225-9066
URL:https://umdf.org/event/energy-for-life-walk-indianapolis-2/
LOCATION:Coxhall Gardens Children’s Pavilion\, 11677 Towne Road\, Carmel\, IN\, 46032
CATEGORIES:EFL,Family Friendly,Fundraising
ORGANIZER;CN="Monika Hancock":MAILTO:monika.hancock@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240906T200000
DTEND;TZID=America/New_York:20240906T210000
DTSTAMP:20260423T074625
CREATED:20230622T182147Z
LAST-MODIFIED:20230622T182745Z
UID:10002070-1725652800-1725656400@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-09-06/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240905T200000
DTEND;TZID=America/New_York:20240905T210000
DTSTAMP:20260423T074625
CREATED:20231019T142537Z
LAST-MODIFIED:20251209T192747Z
UID:10002415-1725566400-1725570000@umdf.org
SUMMARY:Adult Virtual Support Meeting
DESCRIPTION:Adult Virtual Support Meeting \nHello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. \nWe will get to know each other\, share resources\, and build community! \nJoin us for a VIRTUAL MEETING!\nThe FIRST Thursday of every month!\n8:00pm-9:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nTHANK YOU TO OUR SPONSORS \nEdith L. Trees Charitable Trust \nAstellas \nJack Edwards Family Impact Fund \n  \n 
URL:https://umdf.org/event/adult-virtual-support-meetingsep2022-2-2/2024-09-05/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240902T100000
DTEND;TZID=America/Los_Angeles:20240902T110000
DTSTAMP:20260423T074625
CREATED:20240708T192355Z
LAST-MODIFIED:20250828T233020Z
UID:10003176-1725271200-1725274800@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2024-09-02/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240902T100000
DTEND;TZID=America/New_York:20240902T110000
DTSTAMP:20260423T074625
CREATED:20220301T170012Z
LAST-MODIFIED:20220923T194001Z
UID:10003830-1725271200-1725274800@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nMonday\, March 7 • 10:00pm – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Astellas • Jack Edwards Family Impact Fund
URL:https://umdf.org/event/california-virtual-support-group-meeting/2024-09-02/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240830T200000
DTEND;TZID=America/New_York:20240830T210000
DTSTAMP:20260423T074625
CREATED:20230622T182147Z
LAST-MODIFIED:20230622T182745Z
UID:10002069-1725048000-1725051600@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-08-30/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240827T120000
DTEND;TZID=America/New_York:20240827T130000
DTSTAMP:20260423T074625
CREATED:20230306T174310Z
LAST-MODIFIED:20241001T130047Z
UID:10001479-1724760000-1724763600@umdf.org
SUMMARY:TK2d Virtual Support Meeting August 2024
DESCRIPTION:TK2d “Virtual” Support Meeting \nLet’s get ready for TK2d Tuesday! \nJoin us for a VIRTUAL MEETING!\nTuesday\, August 27 \,2024\n12:00pm-1:00pm ET\nRegister HERE \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nFor questions\, please email Margaret Moore at: margaret.moore@5mr.c80.myftpupload.com \nSpecial thanks to our Sponsors \nEdith L Trees Charitable Trust \nUCB \n  \n 
URL:https://umdf.org/event/tk2d-virtual-support-meeting-march-2023/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240823T200000
DTEND;TZID=America/New_York:20240823T210000
DTSTAMP:20260423T074625
CREATED:20230622T182147Z
LAST-MODIFIED:20230622T182745Z
UID:10002068-1724443200-1724446800@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-08-23/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240822T190000
DTEND;TZID=America/Chicago:20240822T200000
DTSTAMP:20260423T074625
CREATED:20240620T144219Z
LAST-MODIFIED:20251209T192223Z
UID:10001385-1724353200-1724356800@umdf.org
SUMMARY:Central Region Virtual Support Meeting
DESCRIPTION:Central Region Virtual Support Meeting \nUMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nFourth Thursday of each month • 7:00pm – 8:00pm Central \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-744-1061 Ext 105. \nVisit the UMDF Event Calendar for all updates and upcoming events here.  \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust • Jack Edwards Family Impact Fund
URL:https://umdf.org/event/central-region-virtual-support-meeting-2/2024-08-22/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240820T200000
DTEND;TZID=America/Los_Angeles:20240820T213000
DTSTAMP:20260423T074625
CREATED:20240814T123618Z
LAST-MODIFIED:20240814T123625Z
UID:10000169-1724184000-1724189400@umdf.org
SUMMARY:LHON - Southwest x Pacific Northwest Connect
DESCRIPTION:LHON – Southwest x Pacific Northwest Connect \nThis Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) community! Contact Bob Banks with any questions at rwbanks@hotmail.com. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 \nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+16699006833\,\,95371313871#\n+16468769923\,\,95371313871#
URL:https://umdf.org/event/lhon-southwestconnect-2022-3/
CATEGORIES:LHON,Pacific,Southwest,Support Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240817T100000
DTEND;TZID=America/New_York:20240817T120000
DTSTAMP:20260423T074625
CREATED:20240111T130250Z
LAST-MODIFIED:20250206T185233Z
UID:10002960-1723888800-1723896000@umdf.org
SUMMARY:Northeast PA Support Meeting
DESCRIPTION:  \nSupport Meeting- Northeast PA \nThird Saturday of each Month- In-Person \n10:00pm – 12:00pm Eastern\nSt. Luke’s Hospital\nPriscilla Payne Hurd Education Room\nRoom 104\n801 Ostrum Street\nBethlehem\, PA 18015\n \n  \nYou are not alone. Join us to share coping tips and connect with others. \nWe will meet the 3rd Saturday of each month! \n1:00pm – 3:00pm \nFor questions\, please contact Grace Robinson or Janelle Frank\, the Support Group Leaders:\ngracerobinson13@gmail.com or janelle.frank13@gmail.com
URL:https://umdf.org/event/support-group-meeting-nepa-2-2021-01-16-2021-02-20-2-2/2024-08-17/
CATEGORIES:Northeast
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240816T200000
DTEND;TZID=America/New_York:20240816T210000
DTSTAMP:20260423T074625
CREATED:20230622T182147Z
LAST-MODIFIED:20230622T182745Z
UID:10002067-1723838400-1723842000@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-08-16/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240809T200000
DTEND;TZID=America/New_York:20240809T210000
DTSTAMP:20260423T074625
CREATED:20230622T182147Z
LAST-MODIFIED:20230622T182745Z
UID:10002066-1723233600-1723237200@umdf.org
SUMMARY:Teen and Young Adult Virtual Meet-Up Ages 16-35
DESCRIPTION:UMDF Teen/Young Adult \n“Virtual Meet-Up” \nTeens and Young Adults Age 16-35 \nEvery Friday!\n8:00pm ET \nJoin us EVERY Friday for a VIRTUAL Meet-Up! \nJoin us for this “Virtual Meet-Up”! It is tough being stuck at home\, but you are not alone. Let’s get together\, share coping tips and have some FUN! \nUMDF Support Ambassadors\, Kristi Dellinger and Devin Shuman will lead these calls.\nSee you on Friday! \nRegister in advance for this meeting:\nIf you registered last week\, you can use the same information to join every week!\nClick Here to Register Now \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \nIf you have questions\, please email Margaret Moore at margaret.moore@5mr.c80.myftpupload.com
URL:https://umdf.org/event/young-adult-virtual-happy-hour-ages-16-35-2-2-2-2021-01-22-2-3/2024-08-09/
CATEGORIES:Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240807T200000
DTEND;TZID=America/New_York:20240807T210000
DTSTAMP:20260423T074625
CREATED:20250109T015842Z
LAST-MODIFIED:20250129T212652Z
UID:10002740-1723060800-1723064400@umdf.org
SUMMARY:LHON Live! Monthly Call
DESCRIPTION:NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. \nThis call is for everyone interested in LHON…those affected\, carriers\, or sighted supporters…all are welcome.  You can speak up and share your thoughts\, or just listen to what others have to say…It’s your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. \nRecordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ \nReach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with any questions. \nJoin Details:\nOne option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871\nMeeting ID: 953 7131 3871 \nOr if your phone plan includes Unlimited Minutes\, then here are Toll Charge numbers to one-click call: \n+13017158592\,\,95371313871# US\n+13126266799\,\,95371313871# US\nCanada: +16475580588\,\,95371313871#\nAustralia: +61280152088\,\,95371313871#\nUK: +442034815240\,\,95371313871# \nFor callers in other countries\, find your local number here: https://zoom.us/u/aYbvpoNU9\nMeeting ID: 953 7131 3871 \nClick Here for Previous LHON Live! Recordings  \n 
URL:https://umdf.org/event/lhon-live-monthly-call-2-2-2-3/2024-08-07/
CATEGORIES:LHON,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240805T100000
DTEND;TZID=America/Los_Angeles:20240805T110000
DTSTAMP:20260423T074625
CREATED:20240708T192355Z
LAST-MODIFIED:20250828T233020Z
UID:10001112-1722852000-1722855600@umdf.org
SUMMARY:California Virtual Support Group Meeting
DESCRIPTION:UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips\, share your story and connect with others. We hope you will attend and see that you are not alone. \nThe first Monday of each month• 10:00am – 11:00am Pacific \nLearn more & register here. \nRegistration is required\, and you will receive a confirmation email with information to join the meeting. If you have any questions\, contact Margaret Moore at margaret.moore@5mr.c80.myftpupload.com or 412-354-1553. \nVisit the UMDF Event Calendar for all updates and upcoming events here. \nSpecial Thanks to our Sponsors\nEdith L. Trees Charitable Trust
URL:https://umdf.org/event/california-virtual-support-group-meeting-2022-09-05-3-2-2-2/2024-08-05/
CATEGORIES:Pacific,Support Meeting
ORGANIZER;CN="Margaret Moore":MAILTO:margaret.moore@umdf.org
END:VEVENT
END:VCALENDAR